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长新冠门诊患者对护理的看法——来自德国的区域定性分析

Patient Perspectives on the Care in a Long COVID Outpatient Clinic-A Regional Qualitative Analysis from Germany.

作者信息

Gölz Lea Alexandra, Poß-Doering Regina, Merle Uta, Wensing Michel, Stengel Sandra

机构信息

Department of Primary Care and Health Services Research, Heidelberg University Hospital, Heidelberg University, 69120 Heidelberg, Germany.

Department of Internal Medicine IV, Heidelberg University Hospital, Heidelberg University, 69120 Heidelberg, Germany.

出版信息

Healthcare (Basel). 2025 Apr 3;13(7):818. doi: 10.3390/healthcare13070818.

Abstract

: Long COVID specialized outpatient clinics (sOCs), which are part of the recommended long COVID care, usually face high demand. Few studies focused on the experience of care in such facilities in Germany. This study investigated how patients experience care in a sOC at a German university hospital. : Semi-structured interviews were conducted with patients attending this clinic between October 2022 and January 2023. Data analysis was based on thematic analysis. : The themes from interviews with 14 patients (F = 11, M = 3) could be broadly categorized into statements on the pathway to the sOC, and statements on care provided in the sOC. Findings show that patients' high expectations at the sOC appointment were shaped by previous experiences with care, which were mainly perceived as inadequate. Care in the sOC was predominantly perceived as competent, empathetic and relevant for further care and coping with the disease. A deterioration in health directly related to the consultation (classifiable as post-exertional malaise) was frequently described, as was a high need for ongoing consultation. : Overall, the findings point to a need for adaptations in the sOC, such as identifying optimized models of care and tailoring them to the patients' limited resources. This includes measures to improve care outside the sOC.

摘要

长新冠专科门诊(sOCs)是推荐的长新冠护理的一部分,通常面临着很高的需求。很少有研究关注德国此类机构的护理体验。本研究调查了患者在德国一家大学医院的长新冠专科门诊的护理体验。:2022年10月至2023年1月期间,对该门诊的患者进行了半结构化访谈。数据分析基于主题分析。:对14名患者(女性 = 11名,男性 = 3名)的访谈主题大致可分为关于前往长新冠专科门诊就医途径的陈述,以及关于长新冠专科门诊提供的护理的陈述。研究结果表明,患者在长新冠专科门诊就诊时的高期望是由之前的护理经历塑造的,而这些经历主要被认为是不足的。长新冠专科门诊的护理主要被认为是专业的、有同理心的,并且与进一步的护理和应对疾病相关。经常有人描述与咨询直接相关的健康恶化情况(可归类为运动后不适),以及对持续咨询的高度需求。:总体而言,研究结果表明长新冠专科门诊需要进行调整,例如确定优化的护理模式,并根据患者有限的资源进行调整。这包括改善长新冠专科门诊之外护理的措施。

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