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重症监护病房患者及其亲属对预立医疗指示的知晓、认知与看法:一项试点研究

Knowledge, Awareness, and Perception of Advanced Medical Directives Among Patients and Their Relatives in the Critical Care Unit: A Pilot Study.

作者信息

Kumar Ajay, Barwa Jyoti, Singh Rattan, Thakral Sahil, Patra Apurba

机构信息

Forensic Medicine and Toxicology, All India Institute of Medical Sciences, Bathinda, Bathinda, IND.

Anatomy, All India Institute of Medical Sciences, Bathinda, Bathinda, IND.

出版信息

Cureus. 2025 Mar 13;17(3):e80538. doi: 10.7759/cureus.80538. eCollection 2025 Mar.

Abstract

BACKGROUND

Advance medical directives (AMDs) are legal documents that allow individuals to specify their medical care preferences in case they become incapacitated due to severe illness or injury. Understanding public awareness and attitudes toward AMDs is crucial for improving their implementation.

MATERIALS AND METHODS

A cross-sectional study was conducted in the critical care unit of a tertiary care hospital, involving 50 patients and their relatives over the age of 18 after taking informed written consent. A specially designed questionnaire was used to assess their awareness, understanding, and attitudes toward AMDs.

RESULTS

The study revealed significant gaps in awareness and adoption of AMDs. Notably, none of the female participants had prepared the AMDs, and all individuals who had prepared one were over the age of 60. Additionally, none of the Hindu participants had AMDs, while three (8.1%) Sikh participants had prepared one. Awareness of legal formalities, such as the need for notarization or witnessing, was low. Moreover, only a minority of participants were aware that healthcare institutions could decline to comply with an AMD.

CONCLUSIONS

While some awareness of AMDs exists, the majority of the population remains unfamiliar with their guidelines and procedures. Targeted educational initiatives are essential to bridge this knowledge gap and promote informed decision-making regarding end-of-life care.

摘要

背景

预立医疗指示(AMDs)是法律文件,允许个人在因重病或重伤而丧失行为能力时指定自己的医疗护理偏好。了解公众对预立医疗指示的认识和态度对于改善其实施情况至关重要。

材料与方法

在一家三级医院的重症监护病房进行了一项横断面研究,在获得知情书面同意后,纳入了50名18岁以上的患者及其亲属。使用一份专门设计的问卷来评估他们对预立医疗指示的认识、理解和态度。

结果

该研究揭示了在预立医疗指示的认识和采用方面存在重大差距。值得注意的是,没有女性参与者准备预立医疗指示,而所有准备了预立医疗指示的人都超过了60岁。此外,印度教参与者中没有人有预立医疗指示,而三名(8.1%)锡克教参与者准备了一份。对法律手续的认识,如公证或见证的必要性,很低。此外,只有少数参与者意识到医疗机构可能拒绝遵守预立医疗指示。

结论

虽然对预立医疗指示有一定的认识,但大多数人仍然不熟悉其指导方针和程序。有针对性的教育举措对于弥合这一知识差距和促进关于临终护理的明智决策至关重要。

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