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科罗拉多州的临终医疗援助:一个独特的集中化项目头几年的观点、数据及经验教训

Medical Aid in Dying in the State of Colorado: Perspectives, Data, and Lessons Learned in the First Years of a Uniquely Centralized Program.

作者信息

Mandell Melanie, Van Valkenburg Katie Sue, O'Neil Skye, Roosevelt Genie E, Mason Kerri

机构信息

School of Medicine, University of Colorado, Aurora, Colorado, USA.

Denver Health Hospital and Authority, Denver, Colorado, USA.

出版信息

J Palliat Med. 2025 Jul;28(7):869-874. doi: 10.1089/jpm.2024.0322. Epub 2025 Apr 14.

Abstract

In 2016, Colorado voters approved Proposition 106, "Access to Medical Aid in Dying," which amended Colorado statutes to include the Colorado End-of-life Options Act. This statute is similar to the aid in dying laws enacted in states that currently have aid in dying laws. In 2018, Denver Health and Hospital Authority, an urban, county safety-net hospital established a program to provide comprehensive medical aid in dying care via a centralized clinic with a dedicated team including a medical director, social worker, and a network of volunteer consultants. This clinic is physically located on the main campus of Denver Health Medical Center, but most patients are seen via the virtual platform. As the program has developed and matured, it has grown exponentially. This is due to its ease of accessibility, statewide educational efforts, and the relatively low cost and need-based, free services it provides. We present here the programs' five-year statistics and methodology that have resulted in a unique medical aid in dying care model. A single-center retrospective cohort study of patients who met the state law criteria with at least one visit to the clinic. As consistent with Colorado law, inclusion criteria include patients are 18 years of age or older, a resident of Colorado, have a terminal illness with a prognosis of less than six months to live, do not have any underlying mental illness, and are voluntarily expressing a desire to access the law without evidence of coercion. The patient must also be able to self-administer the medication. From January 1, 2018, through June 30, 2024, 660 patients met inclusion criteria. Diagnoses included cancer (53%), progressive neurological disease (14%), lung disease (13%), and cardiac disease (12%). Of the total 497/660 (75%) patients had two visits with physicians and 494/497 (99%) received a medication combination prescription. Of the 163 (25%) patients with only one visit, 50% had a date of death documented with 64/80 (80%) patients dying within 15 days of the first visit. In six and a half years, our centralized program assisted over 650 Colorado patients in their quest for accessing medical aid in dying care, providing a wide continuum of services from initial intake and counseling, visits, and financial aid to specific grief counseling for loved ones. We believe our centralized system may function as a model for other hospitals considering the need to improve aid in dying access and care.

摘要

2016年,科罗拉多州选民通过了第106号提案“临终医疗援助准入”,该提案修订了科罗拉多州法规,纳入了《科罗拉多州临终选择法案》。这项法规与目前已颁布临终医疗援助法律的州所实施的相关法律类似。2018年,丹佛健康与医院管理局(一家城市县属安全网医院)设立了一个项目,通过一个集中诊所提供全面的临终医疗援助护理服务,该诊所配备了一支专业团队,包括一名医疗主任、一名社会工作者以及一个志愿者顾问网络。该诊所实际位于丹佛健康医疗中心的主校区,但大多数患者是通过虚拟平台接受诊疗的。随着该项目的发展和成熟,其规模呈指数级增长。这得益于其便捷的可及性、全州范围的教育推广活动,以及它提供的相对低成本且基于需求的免费服务。我们在此展示该项目的五年统计数据和方法,这些数据和方法形成了一种独特的临终医疗援助护理模式。这是一项针对符合该州法律标准且至少到诊所就诊过一次的患者的单中心回顾性队列研究。与科罗拉多州法律一致,纳入标准包括患者年龄在18岁及以上、是科罗拉多州居民、患有终末期疾病且预期寿命不足六个月、没有任何潜在精神疾病,并且自愿表达希望获得该法律规定的援助且无胁迫证据。患者还必须能够自行服药。从2018年1月1日至2024年6月30日,660名患者符合纳入标准。诊断结果包括癌症(53%)、进行性神经疾病(14%)、肺部疾病(13%)和心脏病(12%)。在总计497/660(75%)的患者中,有497名患者与医生进行了两次就诊,其中494/497(99%)的患者获得了药物组合处方。在仅就诊一次的163名(25%)患者中,50%有死亡记录,其中64/80(80%)的患者在首次就诊后15天内死亡。在六年半的时间里,我们的集中项目协助了650多名科罗拉多州患者寻求临终医疗援助护理,提供了从初始接待与咨询、就诊、经济援助到为亲人提供特定哀伤辅导等广泛的连续服务。我们认为,考虑到改善临终医疗援助可及性和护理的需求,我们的集中系统可为其他医院提供一个范例。

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