Rosa Mariangela, Santini Anna, De Tommasi Valentina, Agosto Caterina, Giacomelli Luca, Papa Simonetta, Vecchi Lara, Benini Franca
Pediatric Pain and Palliative Care Service, Department of Women's and Children's Health, University Hospital, Padova, Italy.
Polistudium SRL, Milan, Italy.
BMC Palliat Care. 2025 Apr 14;24(1):103. doi: 10.1186/s12904-025-01709-2.
Comprehensive care, which includes psychological support for pediatric palliative care (PPC) patients, addresses all aspects of the patient's life. It focuses on managing disease-related challenges and identifying strategies for personal, relational, and social dynamics. Effective communication between patients and healthcare providers is essential in the PPC setting. While various assistive communication tools have been explored in literature, using instant messaging within PPC remains relatively unexamined. Therefore, this study aims to evaluate the role of this technology in supporting patient care.
Virtual messages exchanged between psychologists and PPC patients via WhatsApp were analyzed retrospectively. The content of these messages was examined qualitatively through thematic analysis using ATLAS.ti software, and sociodemographic characteristics were also collected.
A total of 25 patients receiving PPC services were recruited, with 5,623 messages evaluated across 766 interaction threads between patients and psychologists. On average, there were 7.34 messages per thread, ranging from 1 to 116 messages per thread. The qualitative thematic analysis revealed that the message content primarily fell into two areas: informative and psychological. The informative area included exchanges about symptomatology, procedures performed, visits, and general health. The psychological area consisted of messages reflecting negative and positive thoughts and emotions related to personal experiences, peer relationships, and family dynamics. Notably, 8.2% of the messages were significant enough to be shared within the team, which helped redirect or modify the care plan for the child and family. Additionally, 8.9% of the messages prompted medical, nursing, or psychological emergency consultations.
This communication tool appears more accessible for adolescent patients who regularly use instant messaging applications. Its immediacy and ease of use make such communication strategies effective and efficient for organizing, coordinating, and implementing care for a sizable portion of PPC patients.
综合护理包括为儿科姑息治疗(PPC)患者提供心理支持,涵盖患者生活的各个方面。它专注于应对与疾病相关的挑战,并确定个人、人际关系和社会动态方面的策略。在PPC环境中,患者与医疗服务提供者之间的有效沟通至关重要。虽然文献中已经探索了各种辅助沟通工具,但在PPC中使用即时通讯相对较少受到研究。因此,本研究旨在评估这项技术在支持患者护理方面的作用。
回顾性分析心理学家与PPC患者通过WhatsApp交换的虚拟信息。使用ATLAS.ti软件通过主题分析对这些信息的内容进行定性检查,并收集社会人口学特征。
共招募了25名接受PPC服务的患者,评估了患者与心理学家之间766个互动线程中的5623条信息。每个线程平均有7.34条信息,每个线程的信息数量从1条到116条不等。定性主题分析显示,信息内容主要分为两个领域:信息性和心理性。信息性领域包括关于症状、所进行的程序、就诊和总体健康状况的交流。心理性领域由反映与个人经历、同伴关系和家庭动态相关的消极和积极思想及情绪的信息组成。值得注意的是,8.2%的信息非常重要,足以在团队内部共享,这有助于重新调整或修改儿童及其家庭的护理计划。此外,8.9%的信息促使进行医疗、护理或心理紧急会诊。
这种沟通工具对于经常使用即时通讯应用程序的青少年患者来说似乎更容易使用。其即时性和易用性使这种沟通策略对于为相当一部分PPC患者组织、协调和实施护理有效且高效。