家长对儿童肿瘤学临床试验及治疗选择的看法：一项横断面调查。
Parental perspectives on access to paediatric oncology clinical trials and treatment options: A cross-sectional survey.
作者信息
Perumal Yuvaraj, S Yogesh, S Roshni, R Saranya, Sathiyamurthy Nithyashree, Sharma Yagvalkya, Kanthamneni Mohana
机构信息
Department of Neuro ICU, People Tree Hospitals, Tumkur Road, Goraguntepalya, Bengaluru, Karnataka, India.
Institute of Internal Medicine, Madras Medical College & Rajiv Gandhi Government General Hospital, MHPE Scholar, Sri Balaji Vidyapeeth University, Pondicherry.
出版信息
Bioinformation. 2024 Dec 31;20(12):1959-1963. doi: 10.6026/9732063002001959. eCollection 2024.
Parents of children with cancer often face complex decisions about clinical trial participation and treatment options. This cross-sectional survey of 100 parents of pediatric oncology patients explored their perspectives on accessing clinical trials, focusing on influencing factors and perceived barriers. While most parents expressed interest in clinical trial participation, common obstacles included inadequate information, geographic constraints and financial challenges. Many parents emphasized the need for improved communication with healthcare providers to better understand trial risks and benefits. These findings suggest that addressing informational and logistical barriers can enhance access to clinical trials and support informed decision-making among parents of pediatric oncology patients.
患有癌症的儿童的父母在参与临床试验和选择治疗方案方面常常面临复杂的决策。这项针对100名儿科肿瘤患者父母的横断面调查探讨了他们对参与临床试验的看法，重点关注影响因素和感知到的障碍。虽然大多数父母表示有兴趣参与临床试验，但常见的障碍包括信息不足、地理限制和经济挑战。许多父母强调需要改善与医疗服务提供者的沟通，以便更好地了解试验的风险和益处。这些发现表明，解决信息和后勤方面的障碍可以增加参与临床试验的机会，并支持儿科肿瘤患者父母做出明智的决策。
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