Heuvink Parel, van Dokkum Nienke H, Van Braeckel Koenraad N J A, Bouma Helene A, Kraft Karianne E, Bos Arend F, Krabbe Paul F M
Division of Neonatology, Department of Pediatrics, Beatrix Children's Hospital, University Medical Center Groningen, University of Groningen, Hanzeplein 1, P.O. Box 30.001, 9713 GZ Groningen, The Netherlands.
Department of Epidemiology, University Medical Center Groningen, University of Groningen, Hanzeplein 1, P.O. Box 30.001, 9713 GZ Groningen, The Netherlands.
Int J Environ Res Public Health. 2025 Mar 17;22(3):447. doi: 10.3390/ijerph22030447.
Health-related quality of life (HRQoL) in neonatal intensive care unit (NICU) graduates during the first year after birth is unknown. Gaining more insight into parental perspectives on HRQoL in this group may aid healthcare professionals in follow-up care. We aimed to assess HRQoL of NICU graduates during their first year after birth from a parental perspective using the newly developed Infant Quality of Life Instrument mobile application questionnaire. This was a prospective cohort study including NICU graduates of all gestational ages (N = 108). We assessed which of seven HRQoL domains, Sleeping, Feeding, Breathing, Stooling, Mood, Skin, and Interaction, proved most problematic during infants' first year after birth and whether there were differences between the gestational age groups. The three domains proving most problematic from the parents' perspective were Feeding (ranging from 14% to 43%), Sleeping (ranging from 23% to 42%), and Interaction (decreasing from 86% to 19%). The trajectories of extremely preterm infants were more frequently problematic than those of other groups. Healthcare professionals should focus on these most problematic domains in their follow-up care.
新生儿重症监护病房（NICU）出院的患儿在出生后第一年的健康相关生活质量（HRQoL）尚不清楚。深入了解家长对该群体HRQoL的看法可能有助于医护人员进行后续护理。我们旨在从家长的角度，使用新开发的婴儿生活质量仪器移动应用程序问卷，评估NICU出院患儿在出生后第一年的HRQoL。这是一项前瞻性队列研究，纳入了所有孕周的NICU出院患儿（N = 108）。我们评估了七个HRQoL领域（睡眠、喂养、呼吸、排便、情绪、皮肤和互动）中，哪些在婴儿出生后的第一年被证明是最成问题的，以及不同孕周组之间是否存在差异。从家长的角度来看，最成问题的三个领域是喂养（范围从14%到43%）、睡眠（范围从23%到42%）和互动（从86%降至19%）。极早产儿的情况比其他组更频繁地出现问题。医护人员在后续护理中应关注这些最成问题的领域。
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