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“我从仅仅是生存转变为积极地生活。”一项关于为后天性脑损伤成年人设立的同伴指导营的定性研究。

"I moved from simply being to actively living." A qualitative study on peer mentorship camps for adults with acquired brain injury.

作者信息

Wedege Pia, Mæland Silje, Divanoglou Anestis, Hamre Charlotta, Abrahamsen Frank Eirik

机构信息

Department of Sport and Social Sciences, Norwegian School of Sport Sciences, Oslo, Norway.

Department of Follow-up Services after Spinal Cord Injury, Sunnaas Rehabilitation Hospital, Bjørnemyr, Norway.

出版信息

Int J Qual Stud Health Well-being. 2025 Dec;20(1):2494358. doi: 10.1080/17482631.2025.2494358. Epub 2025 Apr 17.

Abstract

PURPOSE

This study explored the experiences of an Active Rehabilitation peer mentorship camp on individuals with acquired brain injury (mentees) and its impact on their daily lives.

METHODS

The research involved field observations and longitudinal interviews with 18 mentees attending an Active Rehabilitation camp in Norway. Data were narratively analyzed using the Self-determination theory for insight and discussion.

RESULTS

Three themes were constructed from the analysis. The first theme, "Striking a balance between rest and activity," reflects how mentees managed post-injury fatigue and how camp experiences enhanced their understanding and coping strategies. The second theme, "Rebuilding who I am," addresses stigma, reduced self-esteem, and acceptance challenges faced by mentees, revealing positive effects from camp participation. The third theme, "Finding a new flock," describes the reduction in social circles after injury and how interactions at the camp expanded their peer networks during and after the camp.

CONCLUSIONS

Active Rehabilitation camps enhance community-based rehabilitation for individuals with acquired brain injury by improving knowledge, boosting self-esteem, and broadening social networks. It is recommended that camp providers assess the impact of room-sharing and devise strategies for personalizing camp activities and effectively matching mentees and peer mentors.

摘要

目的

本研究探讨了积极康复同伴指导营对后天性脑损伤患者(学员)的影响及其对他们日常生活的作用。

方法

该研究包括对挪威一个积极康复营的18名学员进行实地观察和纵向访谈。运用自我决定理论对数据进行叙事分析,以获得深入见解并展开讨论。

结果

分析得出三个主题。第一个主题“在休息与活动之间取得平衡”,反映了学员如何应对受伤后的疲劳以及营地经历如何增强他们的理解和应对策略。第二个主题“重塑自我”,涉及学员面临的耻辱感、自尊降低和接纳挑战,揭示了参与营地活动带来的积极影响。第三个主题“找到新群体”,描述了受伤后社交圈子的缩小以及营地中的互动如何在营地期间及之后扩大他们的同伴网络。

结论

积极康复营通过提高认知、增强自尊和扩大社交网络,加强了对后天性脑损伤患者的社区康复。建议营地提供者评估合住的影响,并制定个性化营地活动的策略,以及有效地匹配学员和同伴导师。

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Peer mentoring for people with acquired brain injury - a systematic review.脑损伤患者的朋辈指导 - 系统评价。
Brain Inj. 2024 Mar 20;38(4):316-329. doi: 10.1080/02699052.2024.2310779. Epub 2024 Feb 6.
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Factors Influencing Self-Esteem After a Traumatic Brain Injury.创伤性脑损伤后自尊的影响因素。
J Head Trauma Rehabil. 2024;39(2):160-168. doi: 10.1097/HTR.0000000000000885. Epub 2024 Mar 18.
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Peer mentorship: a key element in Active Rehabilitation.同伴辅导:积极康复中的关键要素。
Br J Sports Med. 2022 Nov;56(22):1322-1323. doi: 10.1136/bjsports-2022-105995. Epub 2022 Aug 9.

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