Karvonen Kayla L, Anunwah Erica, Gilmore Serena, Griffiths-Randolph Ursula, Karvonen Kristine A, Moore Dishon, Miller Kobi, Overall Josten, Wooten Lawren, Afulani Patience A
Department of Pediatrics, University of California San Francisco, San Francisco, CA.
Department of Pediatrics, University of California San Diego, San Diego, CA.
J Pediatr. 2025 Jul;282:114598. doi: 10.1016/j.jpeds.2025.114598. Epub 2025 Apr 16.
To identify Black preterm infant caregiver experiences and institutional priorities regarding screening and addressing social drivers of health (SDH).
In the Centering Black Preterm Infant Caregiver Priorities study, Black female researchers conducted semistructured interviews in 2024 with Black caregivers of preterm infants born in the San Francisco Bay Area of California. Transcripts were coded using a book generated from an interview guide, and the resulting data were analyzed using thematic analysis. Themes were generated and refined through discussion.
Twenty sociodemographically diverse caregivers participated. Five themes were identified: (1) financial insecurity and inadequate access to resources for everyday social needs contribute negatively to caregiver and child health and well-being; (2) a trusted provider who takes a personal approach to screening and addressing SDH is needed in medical settings; (3) inequitably distributed, fragmented, and disorganized medical and social support systems in the transition to home period are burdensome and a source of stress; (4) community-based organizations centering Black families holistically address SDH and promote social well-being and connectedness; and (5) state and federal legislation, policies, and programs are critical opportunities to address SDH.
SDH are a significant source of stress for caregivers after preterm birth, and there are opportunities across state and federal legislative policies, community-based organizations, medical systems, and connections across the systems to address them.
确定黑人早产婴儿照料者在筛查和解决健康的社会驱动因素（SDH）方面的经历以及机构的优先事项。
在“以黑人早产婴儿照料者优先事项为中心”的研究中，黑人女性研究人员于2024年对加利福尼亚州旧金山湾区出生的早产婴儿的黑人照料者进行了半结构化访谈。使用从访谈指南生成的手册对访谈记录进行编码，并使用主题分析对所得数据进行分析。通过讨论生成并完善主题。
20名社会人口统计学特征各异的照料者参与了研究。确定了五个主题：（1）经济不安全以及日常社会需求的资源获取不足对照料者和儿童的健康与福祉产生负面影响；（2）医疗环境中需要有一位采取个性化方式筛查和解决SDH的值得信赖的提供者；（3）在过渡到家庭阶段时，不公平分配、分散且无组织的医疗和社会支持系统是负担且是压力来源；（4）以黑人为中心的社区组织全面解决SDH并促进社会福祉和联系；（5）州和联邦的立法、政策及项目是解决SDH的关键机会。
SDH是早产照料者压力的重要来源，在州和联邦立法政策、社区组织、医疗系统以及各系统之间的联系方面存在解决这些问题的机会。
