Price Anna, Becker Kieran, Gudka Rebecca, Smith Jane, Mughal Faraz, Melendez-Torres G J, Pitchforth Emma, Newlove-Delgado Tamsin
University of Exeter Medical School, Exeter, United Kingdom
University of Exeter Medical School, Primary Care Research Group, Exeter, United Kingdom.
Br J Gen Pract. 2025 Apr 22. doi: 10.3399/BJGP.2024.0755.
Attention deficit hyperactivity disorder (ADHD) is a common neurodevelopmental disorder which can have poor long-term outcomes when unmanaged. Young people aged 16-25 with ADHD are often unable to access specialist healthcare as recommended by UK guidelines, due to gaps in services, poor transitional support between child and adult services, and long waiting lists. Healthcare information, which is important for condition management, may help mitigate service gaps and support thriving in people with ADHD, however little is known about provision via primary care.
To investigate experiences of information provision supporting management of young people with ADHD in general practice and explore the potential of digital resources.
This qualitative research comprised interviews with young people with ADHD, their supporters, and primary healthcare professionals from sites across England.
Participants were recruited from five purposively sampled general practices, varying by local area characteristics. Semi-structured interviews included questions about information provision, healthcare information needs, and digital resources. Themes were generated using reflexive thematic analysis, within a critical realist framework.
20 participants were recruited (11 healthcare professionals and nine people with lived experience). Four themes were generated: lack of ADHD-specific resources, supporting patients with condition management, dedicated resources for clinicians, and digital resources enhancing care.
People with lived experience and healthcare professionals want better healthcare information about ADHD in general practice, including co-produced resources to support understanding and self-management. Digital resources represent a potentially cost-effective and accessible solution that is currently under-utilised.
注意力缺陷多动障碍（ADHD）是一种常见的神经发育障碍，若不加以管理，长期预后可能较差。由于服务存在缺口、儿童与成人服务之间的过渡支持不足以及等候名单过长，16至25岁患有ADHD的年轻人往往无法按照英国指南的建议获得专科医疗服务。对病情管理至关重要的医疗保健信息可能有助于弥补服务缺口，并支持ADHD患者茁壮成长，然而，关于通过初级保健提供此类信息的情况却知之甚少。
调查在全科医疗中为ADHD青少年提供信息支持管理的经验，并探索数字资源的潜力。
这项定性研究包括对来自英格兰各地的ADHD青少年、他们的支持者以及初级医疗保健专业人员进行访谈。
从五个根据目的抽样的全科诊所招募参与者，这些诊所因当地特征而异。半结构化访谈包括有关信息提供、医疗保健信息需求和数字资源的问题。在批判实在论框架内，使用反思性主题分析生成主题。
招募了20名参与者（11名医疗保健专业人员和9名有实际经验的人）。生成了四个主题：缺乏ADHD特定资源、支持患者进行病情管理、为临床医生提供专用资源以及数字资源改善护理。
有实际经验的人和医疗保健专业人员希望在全科医疗中获得更好的关于ADHD的医疗保健信息，包括共同制作的资源以支持理解和自我管理。数字资源是一种潜在的具有成本效益且易于获取的解决方案，目前未得到充分利用。
