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新冠疫情期间癌症患者家庭照顾者面临的护理挑战:一项定性研究

Caring Challenges of Family Caregivers of Cancer Patients in the COVID-19 Pandemic: A Qualitative Study.

作者信息

Sharbafchi Mohammad Reza, Mousavi Seyed Mohammad Hossein, Sheikhani Ghazaleh, Keyvanara Mahmoud, Ani Sima

机构信息

Department of Psychiatry, Behavioral Sciences Research Center and Khorshid Hospital, Faculty of Medicine, Isfahan University of Medical Sciences, Isfahan, Iran.

Department of Psychology, Faculty of Educational Sciences and Psychology, University of Isfahan, Isfahan, Iran.

出版信息

Iran J Nurs Midwifery Res. 2025 Mar 10;30(2):175-181. doi: 10.4103/ijnmr.ijnmr_125_23. eCollection 2025 Mar-Apr.

Abstract

BACKGROUND

Caregivers of cancer patients experience significant challenges that affect their physical, psychological, and social well-being. This qualitative study aims to explore the specific challenges faced by caregivers of cancer patients during the COVID-19 pandemic.

MATERIALS AND METHODS

The present study is a conventional qualitative study based on the Graneheim method for content analysis. Data were collected through semi-structured individual interviews with 11 family caregivers of cancer patients in Isfahan, Iran.

RESULTS

The challenges faced by family caregivers of cancer patients are classified into three main categories: 1) caregiver burnout which includes, "non-cooperation of the patient with the caregiver," "funding the costs of care and treatment," "lack of support for the family caregiver by the family and society," and "lack of knowledge and proper care skills." 2) Health threats to the family caregiver which include, "imbalance of self-care versus patient care," "disruption of a healthy lifestyle," and "occurrence of psychophysical symptoms caused by stress in caregivers." 3) Work-family-care conflicts which include: "conflict between patient care and family" and "conflict between patient care and work."

CONCLUSIONS

This study provides additional insights into the personal and societal challenges faced by family caregivers of cancer patients during the COVID-19 pandemic. Based on our findings, health policymakers can take concrete steps to address these challenges and enhance the support for family caregivers, who play a crucial role in public health.

摘要

背景

癌症患者的照料者面临着重大挑战,这些挑战会影响他们的身体、心理和社会福祉。这项定性研究旨在探讨在新冠疫情期间癌症患者照料者所面临的具体挑战。

材料与方法

本研究是一项基于格兰海姆内容分析法的传统定性研究。通过对伊朗伊斯法罕的11名癌症患者家庭照料者进行半结构化个人访谈收集数据。

结果

癌症患者家庭照料者面临的挑战主要分为三大类:1)照料者倦怠,包括“患者不配合照料者”“支付护理和治疗费用”“家庭和社会对家庭照料者缺乏支持”以及“缺乏知识和适当的护理技能”。2)家庭照料者面临的健康威胁,包括“自我护理与患者护理失衡”“健康生活方式被打乱”以及“照料者因压力出现身心症状”。3)工作-家庭-照料冲突,包括:“患者护理与家庭之间的冲突”以及“患者护理与工作之间的冲突”。

结论

本研究为新冠疫情期间癌症患者家庭照料者所面临的个人和社会挑战提供了更多见解。基于我们的研究结果,卫生政策制定者可以采取具体措施来应对这些挑战,并加强对在公共卫生中发挥关键作用的家庭照料者的支持。

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