Pelacho-Ríos Lucía, Mayoral Samuel, Jorques-Infante María José, Bernabe-Valero Gloria
Escuela de Doctorado, Universidad Católica de Valencia San Vicente Mártir, 46001 Valencia, Spain.
Facultad de Psicología, Universidad Católica de Valencia San Vicente Mártir, 46100 Valencia, Spain.
Behav Sci (Basel). 2025 Apr 15;15(4):535. doi: 10.3390/bs15040535.
This qualitative study explores the experiences of 24 parents who have experienced the death of a child, focusing on identifying practices that either facilitated or hindered their grieving process. In-depth interviews revealed key supportive practices, including emotional empathy, clear communication, and the presence of healthcare professionals during critical moments. Parents highlighted the significance of support groups, such as "Renacer", in providing emotional connection, hope, and the opportunity for personal transformation. However, negative experiences emerged related to impersonal communication, lack of empathy, and delays in bureaucratic processes, which aggravated the pain and hindered emotional adjustment over time. The findings underscore the importance of personalized, empathetic care and the need for more efficient systems in supporting grieving parents. These insights can guide professionals in improving grief care, emphasizing respect for the emotional needs of parents and the creation of safe, supportive environments.
这项定性研究探讨了24位经历过孩子死亡的父母的经历，重点是确定促进或阻碍他们悲伤过程的做法。深入访谈揭示了关键的支持性做法，包括情感共鸣、清晰的沟通以及在关键时刻医护人员的陪伴。父母们强调了诸如“重生”这样的支持小组在提供情感联系、希望和个人转变机会方面的重要性。然而，也出现了一些负面经历，比如冷漠的沟通、缺乏同理心以及官僚程序的拖延，这些随着时间的推移加剧了痛苦并阻碍了情绪调整。研究结果强调了个性化、有同理心的护理的重要性，以及在支持悲伤的父母方面需要更高效的系统。这些见解可以指导专业人员改善悲伤护理，强调尊重父母的情感需求并创造安全、支持性的环境。
