Campos-Cano Amparo, Ortega-Avila Ana Belen, Diaz-Miguel Salvador, Castillo-Domínguez Alejandro, Lopezosa-Reca Eva, Gijon-Nogueron Gabriel, Ramos-Petersen Laura, Reinoso-Cobo Andrés
Department of Nursing and Podiatry, Faculty of Health Sciences, University of Malaga, 29016 Málaga, Spain.
Biomedical Research Institute (IBIMA), 29010 Malaga, Spain.
Medicina (Kaunas). 2025 Apr 7;61(4):677. doi: 10.3390/medicina61040677.
: Rheumatoid arthritis (RA) is a chronic autoimmune disease that frequently causes foot deformities, decreasing mobility and quality of life. Although surgical interventions seek to alleviate these alterations, the long-term experiences of patients have not been deeply explored. The aim of this study was to describe the experiences of patients with RA undergoing osteoarticular surgery to correct acquired foot deformities. : A qualitative study design was used with structured interviews including 19 patients with RA treated in a specialised rheumatology service. The thematic analysis was carried out using the Braun and Clarke thematic analysis, ensuring compliance with ethical standards and the anonymity of the participants. : Five main themes were identified: experience with pain before and after surgery; impact on functional capacity; complications and need for additional surgeries; emotional impact and quality of life; overall satisfaction with the surgery. While many patients reported significant pain reduction and functional improvements, others faced recurrences of the deformities, persistent pain, and post-surgical complications. Emotional responses ranged from well-being to frustration, depending on surgical outcomes. The five-year follow-up period allowed for a comprehensive assessment of the long-term impact of surgery. The recurrence rate of deformities was notable, and the emotional impact of these recurrences was significant, with patients expressing frustration and distress in some cases. : The patients' experiences were heterogeneous, with both positive and negative outcomes. These findings underscore the importance of individualized management and comprehensive follow-up that consider the clinical outcomes, expectations, and emotional well-being of RA patients undergoing foot surgery.
类风湿性关节炎(RA)是一种慢性自身免疫性疾病,常导致足部畸形,降低活动能力和生活质量。尽管手术干预旨在缓解这些改变,但患者的长期经历尚未得到深入探讨。本研究的目的是描述接受骨关节手术以矫正后天性足部畸形的类风湿性关节炎患者的经历。
采用定性研究设计,进行结构化访谈,访谈对象包括在一家专门的风湿病服务机构接受治疗的19名类风湿性关节炎患者。使用布劳恩和克拉克主题分析法进行主题分析,确保符合伦理标准并保护参与者的匿名性。
手术前后的疼痛经历;对功能能力的影响;并发症及再次手术的需求;情感影响和生活质量;对手术的总体满意度。虽然许多患者报告疼痛明显减轻且功能有所改善,但其他患者面临畸形复发、持续疼痛和术后并发症。情感反应从幸福感到挫败感不等,具体取决于手术结果。五年的随访期有助于全面评估手术的长期影响。畸形复发率值得关注,这些复发的情感影响很大,有些患者表示沮丧和痛苦。
患者的经历各不相同,有积极和消极的结果。这些发现强调了个体化管理和全面随访的重要性,应考虑接受足部手术的类风湿性关节炎患者的临床结果、期望和情感健康状况。