Eriksson Gunilla, Söderhielm Kajsa, Erneby Malin, Guidetti Susanne
Division of Occupational Therapy, Neurobiology, Care Sciences and Society, Karolinska Institutet, Alfred Nobels Allé 23, Huddinge, 14183, Sweden, +46 852480000.
Landstinget Sörmland, Nyköping, Sweden.
JMIR Rehabil Assist Technol. 2025 May 2;12:e69878. doi: 10.2196/69878.
Stroke often leads to long-term effects on daily activities and participation. Consequences impact not only stroke survivors but also their close networks, and capturing their experiences is crucial for the development of effective interventions. F@ce 2.0 is a person-centered, information and communication technology (ICT)-supported stroke rehabilitation intervention currently being evaluated.
This study aims to describe family members' experiences of the F@ce 2.0 intervention from the perspective of being a caregiver to a stroke survivor.
Participants were family members (n=7) of stroke survivors participating in the intervention. Semistructured interviews were conducted at 2 time points, postintervention and 6 months postbaseline, resulting in a total of 13 interviews. Data was analyzed using qualitative inductive content analysis.
An overarching theme was developed from 4 categories. The main theme was the potential of F@ce 2.0 as a support for family members of stroke survivors in the sudden change of life. The categories were: dialogue and partnership with the F@ce 2.0 team, resuming daily activities lowers the demand for family support, support and involvement through the ICT component of F@ce 2.0, and engagement in F@ce 2.0, leading to suggestions for development.
This study aligns with previous research delineating the effects of stroke on family members of stroke survivors. Participants highlighted the positive impact of the focus on daily activities within the intervention. Furthermore, the ICT component was perceived as a support in structuring rehabilitation. Participants, however, suggested further development, both in terms of content and technology.
中风常常会对日常活动和参与产生长期影响。其后果不仅影响中风幸存者，还会波及他们的亲密社交圈，了解他们的经历对于制定有效的干预措施至关重要。F@ce 2.0是一项以患者为中心、由信息通信技术（ICT）支持的中风康复干预措施，目前正在进行评估。
本研究旨在从作为中风幸存者照料者的角度描述家庭成员对F@ce 2.0干预措施的体验。
参与者为参与该干预措施的中风幸存者的家庭成员（n = 7）。在干预后和基线后6个月这两个时间点进行了半结构化访谈，共进行了13次访谈。采用定性归纳内容分析法对数据进行分析。
从4个类别中提炼出一个总体主题。主要主题是F@ce 2.0在生活突然变化时对中风幸存者家庭成员的支持潜力。这些类别包括：与F@ce 2.0团队的对话与合作、恢复日常活动降低了对家庭支持的需求、通过F@ce 2.0的ICT组件提供支持和参与，以及参与F@ce 2.0并提出改进建议。
本研究与之前关于中风对中风幸存者家庭成员影响的研究结果一致。参与者强调了干预措施中关注日常活动的积极影响。此外，ICT组件被视为对康复安排的一种支持。然而，参与者建议在内容和技术方面进一步改进。
