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技术干预对帕金森病患者心理社会福祉及技术干预认知的有效性:一项系统综述。

Effectiveness of technological interventions on psychosocial well-being and perception of technological interventions among people with Parkinson's disease: A systematic review.

作者信息

Lau Terence Kenneth, Tse Man-Kei, Liu Yaqin, Leung Angela Y M

机构信息

The Hong Kong Polytechnic University School of Nursing, Hung Hom, Hong Kong.

The Hong Kong Polytechnic University WHO Collaborating Centre for Community Health Services, Hong Kong, China.

出版信息

Australas J Ageing. 2025 Jun;44(2):e70034. doi: 10.1111/ajag.70034.

Abstract

OBJECTIVES

The increasing number of technological interventions related to Parkinson's disease (PD) signifies growing research interest in the PD technological domain. It remains unknown how these interventions could affect the psychosocial health of people with PD. This systematic review aims to explore how technological interventions affect people with PD psychosocial well-being and their perception towards these interventions.

METHOD

A systematic review was conducted using Cochrane Library®, Embase®, IEEE Xplore Digital Library®, PsycInfo®, PubMed® and Web of Science® databases following PRISMA guidelines. Two individual assessors conducted quality appraisals using the Mixed Method Appraisal Tool. Both quantitative narrative and qualitative thematic synthesis were adopted to analyse the extracted data.

RESULTS

This review included 27 articles with 752 people with PD, with seven categories of technologies implemented in physical rehabilitation. Qualitative findings indicated the overarching theme of coping with technological intervention. Three themes were identified: user perception of intervention design and functional appropriateness, attitude shift and coping, and perceived benefits from technological interventions. Unsuccessful coping attempts and overcomplicated intervention designs induced negative emotions and affected the psychosocial well-being of people with PD.

CONCLUSIONS

Although most PD technological interventions focused on physical rehabilitation, people with PD reported a psychosocial gain in improved autonomy and reinforced social relationships during the intervention period. A better rewardability intervention design was considered more satisfying and could promote self-acceptance rather than stress-inducing. Interventions' technological complexity should match participants' expectations and technological literacy to facilitate the coping process with the intervention for people with PD. More research would be required to quantify the reported psychosocial gain and examine the technological literacy of people with PD when designing a more appropriate intervention regime.

摘要

目的

与帕金森病(PD)相关的技术干预措施数量不断增加,这表明对PD技术领域的研究兴趣日益浓厚。目前尚不清楚这些干预措施会如何影响PD患者的心理社会健康。本系统评价旨在探讨技术干预如何影响PD患者的心理社会幸福感以及他们对这些干预措施的看法。

方法

按照PRISMA指南,使用Cochrane图书馆®、Embase®、IEEE Xplore数字图书馆®、PsycInfo®、PubMed®和科学网®数据库进行系统评价。两名独立评估者使用混合方法评估工具进行质量评估。采用定量叙述和定性主题综合分析提取的数据。

结果

本评价纳入了27篇文章,涉及752名PD患者,在物理康复中实施了七类技术。定性研究结果表明应对技术干预是总体主题。确定了三个主题:用户对干预设计和功能适用性的看法、态度转变与应对,以及技术干预带来的感知益处。应对尝试失败和干预设计过于复杂会引发负面情绪,并影响PD患者的心理社会幸福感。

结论

尽管大多数PD技术干预都集中在物理康复方面,但PD患者报告称,在干预期间,他们在自主性提高和社会关系加强方面获得了心理社会收益。更好的可奖励性干预设计被认为更令人满意,并且可以促进自我接受而非产生压力。干预措施的技术复杂性应与参与者的期望和技术素养相匹配,以促进PD患者应对干预的过程。在设计更合适的干预方案时,需要更多研究来量化所报告的心理社会收益,并考察PD患者的技术素养。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/019a/12048698/b21bb3f27f6c/AJAG-44-0-g001.jpg

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