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后天性脑损伤后动眼神经障碍患者的参与经历。

Participation experience for persons with oculomotor impairments after acquired brain injury.

作者信息

Wagener Sharon G

机构信息

Courage Kenny Rehabilitation Institute, Allina Health, Minneapolis, MN, USA.

出版信息

Br J Occup Ther. 2022 Jun;85(6):409-417. doi: 10.1177/03080226211031804. Epub 2021 Aug 4.

Abstract

INTRODUCTION

While individuals with acquired brain injury (ABI) often receive occupational therapy, relatively little is known about how those with related oculomotor problems characterize their ability to participate in everyday activities and life roles. This study describes the difficulties experienced by this population.

METHOD

This study is a thematic analysis of qualitative responses to open-ended questions based on answers to a standardized assessment. Thirty rehabilitation outpatients with ABI-related oculomotor impairments participated in semi-structured interviews to describe their experiences of difficulties in everyday activities.

RESULTS

Difficulties were associated with three themes: challenges of the activities and environments (activity requirements, physical and socioeconomic environments, and time), self-identified personal difficulties (physical, cognitive, and socioemotional), and changes in habits/roles/priorities (modifications to activities and environments, loss and negative consequences, and life management changes).

CONCLUSION

How people with ABI-related oculomotor impairments experience difficulties while participating in activities is dynamic and complex. Challenging activity requirements and environments often led to personal difficulties, which limited participation. Activity modifications, changes in priorities, and managing energy budget enhanced participation. A model of the experience is proposed. Findings suggest using activity analysis and teaching compensatory methods and life management strategies with individuals may assist in ability to participate.

摘要

引言

虽然获得性脑损伤(ABI)患者经常接受职业治疗,但对于那些有相关眼动问题的患者如何描述他们参与日常活动和生活角色的能力,我们了解得相对较少。本研究描述了这一人群所经历的困难。

方法

本研究是对基于标准化评估答案的开放式问题的定性回答进行的主题分析。30名患有与ABI相关的眼动障碍的康复门诊患者参与了半结构化访谈,以描述他们在日常活动中遇到困难的经历。

结果

困难与三个主题相关:活动和环境的挑战(活动要求、身体和社会经济环境以及时间)、自我认定的个人困难(身体、认知和社会情感方面)以及习惯/角色/优先级的变化(活动和环境的调整、损失和负面后果以及生活管理的变化)。

结论

患有与ABI相关的眼动障碍的人在参与活动时遇到困难的方式是动态且复杂的。具有挑战性的活动要求和环境常常导致个人困难,从而限制了参与度。活动调整、优先级变化以及管理能量预算可增强参与度。提出了一个体验模型。研究结果表明,对个体使用活动分析并教授补偿方法和生活管理策略可能有助于提高其参与能力。

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