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对于获得性脑损伤患者及其家庭护理人员而言,在从医院过渡到家庭的过程中重新参与有意义的活动。

Reengagement in meaningful occupations during the transition from hospital to home for people with acquired brain injury and their family caregivers.

作者信息

Turner Benjamin, Ownsworth Tamara, Cornwell Petrea, Fleming Jennifer

机构信息

Division of Occupational Therapy, School of Health and Rehabilitation Sciences, Therapies Building, University of Queensland, St. Lucia, Queensland 4072 Australia.

出版信息

Am J Occup Ther. 2009 Sep-Oct;63(5):609-20. doi: 10.5014/ajot.63.5.609.

Abstract

OBJECTIVE

To explore people's lived experiences of reengagement in meaningful occupations during the hospital-to-home transition phase after acquired brain injury (ABI).

METHOD

Participants included 20 people with ABI and 18 family caregivers. On the basis of a phenomenological approach, data collection entailed in-depth semistructured interviews at predischarge and 1 and 3 months postdischarge. Thematic analysis of interview transcripts involved open, axial, and selective coding techniques.

RESULTS

Two primary themes emerged from the analysis: desired versus actual participation and struggle for independence. Theme 1 depicts the key occupations of importance to people and their caregivers during transition and explores desired and actual participation in occupations. Theme 2 highlights the struggle to regain independence and the differing perspectives of the 2 participant groups concerning this process.

CONCLUSION

Clinical practice implications relate to client-centered goal setting, contexts and environments in which therapy occurs, and provision of information to patients and families.

摘要

目的

探讨后天性脑损伤(ABI)患者从医院过渡到家庭阶段重新参与有意义活动的生活体验。

方法

参与者包括20名ABI患者和18名家庭照顾者。基于现象学方法,数据收集包括在出院前、出院后1个月和3个月进行深入的半结构化访谈。对访谈记录进行主题分析,采用开放编码、轴心编码和选择性编码技术。

结果

分析得出两个主要主题:期望参与与实际参与以及争取独立的斗争。主题1描述了过渡期间对患者及其照顾者重要的关键活动,并探讨了对活动的期望参与和实际参与情况。主题2强调了重新获得独立的斗争以及两组参与者在这个过程中的不同观点。

结论

临床实践意义涉及以患者为中心的目标设定、治疗发生的背景和环境,以及向患者和家庭提供信息。

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