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可行性:针对自闭症青少年家长的一项干预措施。

Feasibility of : An intervention for parents of adolescents with autism.

作者信息

Wachspress Batel, Berger Itai, Maeir Adina, Mazor-Karsenty Tal

机构信息

School of Occupational Therapy, Faculty of Medicine, Hebrew University of Jerusalem, Jerusalem, Israel.

Faculty of Health Sciences, Ben Gurion University of the Negev, Beer Sheva, Israel.

出版信息

Br J Occup Ther. 2024 Jun;87(6):351-360. doi: 10.1177/03080226241229298. Epub 2024 Feb 17.

DOI:10.1177/03080226241229298
PMID:40337119
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12033712/
Abstract

INTRODUCTION

Parents of individuals with autism face various difficulties, among which are decreased resilience and heightened stress. is an intervention for parents of adolescents with autism that aims to promote parental resilience and enhance adolescents' participation in daily life. This study examines feasibility and explores the improvement of parental resilience and child and parent occupational performance following intervention.

METHODS

A mixed methods pre-post and follow up study. Fourteen parents (six mothers and four couples) of adolescents with autism participated in a series of 13 individual weekly sessions of 90 minutes each. Study results were analyzed before, after, and 3 months post intervention.

RESULTS

All parents completed treatment, with 100% adherence to sessions. Therapist's treatment fidelity was estimated at 95-97% and parent homework completion was 85%. Preliminary efficacy findings show significant improvement in mothers' and adolescents' occupational performance and improvement in maternal resiliency.

CONCLUSION

Research results support the feasibility of the as a family centered, strength-based, intervention program that leads to improvements in adolescent participation and parental resilience.

摘要

引言

自闭症患者的父母面临各种困难,其中包括恢复力下降和压力增大。[具体干预项目名称]是一项针对自闭症青少年父母的干预措施,旨在提高父母的恢复力,并增强青少年对日常生活的参与度。本研究考察了[具体干预项目名称]的可行性,并探讨了干预后父母恢复力以及儿童和父母职业表现的改善情况。

方法

一项混合方法的前后测及随访研究。14名自闭症青少年的父母(6名母亲和4对夫妻)参加了一系列为期13周的个人辅导课程,每周一次,每次90分钟。在干预前、干预后及干预后3个月对研究结果进行分析。

结果

所有父母均完成了治疗,课程依从率为100%。治疗师的治疗保真度估计为95 - 97%,父母家庭作业完成率为85%。初步疗效结果显示,母亲和青少年的职业表现有显著改善,母亲的恢复力也有所提高。

结论

研究结果支持[具体干预项目名称]作为一项以家庭为中心、基于优势的干预项目的可行性,该项目可提高青少年的参与度和父母的恢复力。

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本文引用的文献

1
A qualitative study on parents of autistic adolescents' experience of OT-ParentShip: A family-centred intervention.一项关于自闭症青少年家长接受 OT-ParentShip(一种以家庭为中心的干预方法)体验的定性研究。
Aust Occup Ther J. 2023 Oct;70(5):627-640. doi: 10.1111/1440-1630.12892. Epub 2023 Jul 1.
2
Validity of the Occupational Performance Scale of the Sensory Processing Three Dimensions Measure.感觉加工三维测查作业表现量表的效度。
Am J Occup Ther. 2021 Mar-Apr;75(2):7502205090p1-7502205090p10. doi: 10.5014/ajot.2021.044248.
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Examining the Relationship Between Parental Symptomatology and Treatment Outcomes in Children with Autism Spectrum Disorder.探讨自闭症谱系障碍儿童父母症状与治疗效果之间的关系。
J Autism Dev Disord. 2019 Nov;49(11):4681-4685. doi: 10.1007/s10803-019-04151-5.
4
The parent role in school-based teams for adolescents with autism spectrum disorder.自闭症谱系障碍青少年学校团队中的家长角色。
Sch Psychol. 2019 Jul;34(4):458-467. doi: 10.1037/spq0000289.
5
Parent-Mediated Interventions for Children With Autism Spectrum Disorder: A Systematic Review.针对自闭症谱系障碍儿童的家长介导干预措施:一项系统综述。
Am J Occup Ther. 2019 May/Jun;73(3):7303205010p1-7303205010p13. doi: 10.5014/ajot.2019.030015.
6
Behavioral Activation Approach to Parent Training: Feasibility of Promoting Routines of Exploration and Play During Mealtime (Mealtime PREP).父母培训的行为激活方法:促进用餐时间探索和玩耍常规(用餐时间准备)的可行性。
Am J Occup Ther. 2018 Nov/Dec;72(6):7206205030p1-7206205030p8. doi: 10.5014/ajot.2018.028365.
7
Effectiveness of parent training in improving stress-coping capability, anxiety, and depression in mothers raising children with autism spectrum disorder.家长培训对提高自闭症谱系障碍患儿母亲的压力应对能力、焦虑和抑郁状况的有效性。
Neuropsychiatr Dis Treat. 2018 Dec 7;14:3355-3362. doi: 10.2147/NDT.S188387. eCollection 2018.
8
Content Validity of the Protocol: A Multidimensional Intervention for Parents of Adolescents with High-Functioning Autism Spectrum Disorder.方案的内容效度:针对高功能自闭症谱系障碍青少年父母的多维干预
Phys Occup Ther Pediatr. 2019;39(4):373-387. doi: 10.1080/01942638.2018.1500968. Epub 2018 Sep 6.
9
Relationship Between Sensory Processing and Participation in Daily Occupations for Children With Autism Spectrum Disorder: A Systematic Review of Studies That Used Dunn's Sensory Processing Framework.自闭症谱系障碍儿童的感觉加工与日常活动参与之间的关系:对使用邓恩感觉加工框架的研究的系统评价
Am J Occup Ther. 2018 May/Jun;72(3):7203205030p1-7203205030p9. doi: 10.5014/ajot.2018.024075.
10
Associations Between Resilience and the Well-Being of Mothers of Children with Autism Spectrum Disorder and Other Developmental Disabilities.韧性与自闭症谱系障碍和其他发育障碍儿童的母亲的幸福感之间的关联。
J Autism Dev Disord. 2018 Apr;48(4):1108-1121. doi: 10.1007/s10803-017-3447-z.