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本文引用的文献

1
Working the edges of Posthuman disability studies: theorising with disabled young people with life-limiting impairments.探索后人类残障研究的边缘:与患有生命有限损伤的残疾年轻人一起理论化。
Sociol Health Illn. 2019 Nov;41(8):1473-1487. doi: 10.1111/1467-9566.12962. Epub 2019 Jun 7.
2
With or without us? An audit of disability research in the southern African region.有我们参与还是没有?对南部非洲地区残疾研究的一项审计。
Afr J Disabil. 2014 Jun 4;3(2):76. doi: 10.4102/ajod.v3i2.76. eCollection 2014.
3
Legal and ethical values in the resolution of research-related disputes: how can IRBS respond to participant complaints?解决与研究相关纠纷中的法律和伦理价值:机构审查委员会应如何回应参与者的投诉?
J Empir Res Hum Res Ethics. 2014 Feb;9(1):71-82. doi: 10.1525/jer.2014.9.1.71.
4
Parasites, pawns and partners: disability research and the role of non-disabled researchers.寄生虫、棋子与伙伴:残疾研究及非残疾研究者的角色
Br J Sociol. 1996 Dec;47(4):699-716.

“对我们正在努力改变的状况最精确、最全面的理解”:重拾解放性残疾研究。

"[T]he most precise and thorough understanding of the situation we are struggling to change": re-capturing emancipatory disability research.

作者信息

Beesley Luke

机构信息

Department of Politics, The University of Manchester, Manchester, United Kingdom.

出版信息

Front Sociol. 2025 Apr 23;10:1562498. doi: 10.3389/fsoc.2025.1562498. eCollection 2025.

DOI:10.3389/fsoc.2025.1562498
PMID:40337125
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12055776/
Abstract

This article seeks to contribute to a refoundation of the analytic, qualitative and quantitative methods associated with Emancipatory Disability Research (EDR)-an episto-political approach to disability research which places lay disabled people in positions of authority over research design, operation, and analysis of projects undertaken by professional academics. The argument of this article is that a significant reason for EDR's meager impact on political practice, the burnout and disillusionment of some of its most talented proponents, and its failure to develop beyond limited applications in sociology and disability studies lies in the disjointed and asymmetrical development of its aims and methods. I indicate, particularly, that the core evaluation signifiers for EDR's success (that disabled people concretely benefit from the research, and control both its future direction and the uses made of it) rested on an initial demand from disabled activists for scientific rigor and a realist ontology in research which were subsequently rejected by EDR's academic advocates. Without a grounding in the scientific method, a meta-theory of subject-object relations and knowledge, or an evaluative framework for the objective accuracy of input concepts; EDR's research framework prevented practitioners from producing outputs for which there was a demonstrable demand, while promising forms of research for which there was not.

摘要

本文旨在为与解放性残疾研究(EDR)相关的分析、定性和定量方法的重新构建做出贡献。解放性残疾研究是一种认识论政治方法,它赋予残疾人士在专业学者开展的研究项目的设计、运作和分析方面的权威地位。本文的论点是,EDR对政治实践影响甚微、一些最有才华的支持者感到倦怠和幻灭,以及它未能超越在社会学和残疾研究领域的有限应用而发展,其重要原因在于其目标和方法的脱节与不对称发展。我特别指出,EDR成功的核心评估标志(即残疾人士切实从研究中受益,并控制研究的未来方向及其用途)基于残疾活动家最初对研究中科学严谨性和现实主义本体论的要求,而这些要求后来被EDR的学术倡导者拒绝。由于缺乏科学方法、主客关系和知识的元理论,或输入概念客观准确性的评估框架,EDR的研究框架使从业者无法产生有明显需求的成果,却承诺了不存在需求的研究形式。