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资源匮乏环境下感染艾滋病毒/艾滋病儿童的玩耍情况:照顾者的观点

Play of children living with HIV/AIDS in a low-resourced setting: Perspectives of caregivers.

作者信息

Munambah Nyaradzai, Ramugondo Elelwani L, Cordier Reinie

机构信息

University of Zimbabwe, Harare, Zimbabwe.

University of Cape Town, Cape Town, South Africa.

出版信息

Br J Occup Ther. 2022 Apr;85(4):292-300. doi: 10.1177/03080226211026556. Epub 2021 Aug 4.

Abstract

BACKGROUND

Although play is viewed as a childhood occupation that is spontaneous, it can be limited in children with HIV/AIDS. This study explored the perspectives of caregivers from Zimbabwe on the play of children with HIV/AIDS.

METHODOLOGY

A descriptive qualitative research approach was used to explore the perceptions of caregivers on play of children living with HIV/AIDS. Fifteen caregivers of children aged 4-9 years diagnosed with HIV/AIDS were purposively sampled. Two interviews were carried out with each of the caregivers. Findings were analysed thematically.

FINDINGS

Four major themes were generated from the study: 'Ubuntu is no more', 'Survival is primary (chikuru kurarama)', 'Play affirms that my child is still like other children' and 'More is required for this child'. Although issues of survival were paramount, caregivers were able to highlight the importance of play in affirming childhood, identifying the specific needs for play of children with HIV/AIDS.

CONCLUSION AND SIGNIFICANCE

Play, like all other human occupation, is contextually situated. Poverty and health status are key in shaping how families prioritise play. However, the ability to play for a child with HIV/AIDS also seems to mitigate stigma and may disrupt the 'HIV is death' narrative.

摘要

背景

尽管玩耍被视为一种自发的童年活动,但感染艾滋病毒/艾滋病的儿童的玩耍可能会受到限制。本研究探讨了津巴布韦照顾者对感染艾滋病毒/艾滋病儿童玩耍情况的看法。

方法

采用描述性定性研究方法,以探究照顾者对感染艾滋病毒/艾滋病儿童玩耍情况的看法。有目的地抽取了15名4至9岁被诊断感染艾滋病毒/艾滋病儿童的照顾者。对每位照顾者进行了两次访谈。对研究结果进行了主题分析。

结果

该研究产生了四个主要主题:“乌班图精神不再存在”、“生存是首要的(chikuru kurarama)”、“玩耍表明我的孩子仍然和其他孩子一样”以及“这个孩子需要更多”。尽管生存问题至关重要,但照顾者能够强调玩耍在肯定童年方面的重要性,确定感染艾滋病毒/艾滋病儿童玩耍的具体需求。

结论与意义

与所有其他人类活动一样,玩耍也受具体情境的影响。贫困和健康状况是影响家庭如何优先对待玩耍的关键因素。然而,感染艾滋病毒/艾滋病儿童玩耍的能力似乎也能减轻耻辱感,并可能打破“感染艾滋病毒就是死亡”的说法。

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