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通过远程康复实施的自我管理计划对系统性硬化症患者职业表现和满意度的影响。

The effect of self-management program performed via telerehabilitation on occupational performance and satisfaction of individuals with systemic sclerosis.

作者信息

Karakuş Emirhan, Sari Fulden, Avanoğlu Güler Aslıhan, Oskay Deran, Öksüz Çiğdem

机构信息

Physical Therapy and Rehabilitation Hospital, Ankara Bilkent City Hospital, Ankara, Turkey.

Physiotherapy and Rehabilitation, Bingol University, Bingol, Turkey.

出版信息

Br J Occup Ther. 2025 Mar;88(3):185-192. doi: 10.1177/03080226241283288. Epub 2024 Sep 20.

Abstract

INTRODUCTION

Individuals with systemic sclerosis experience difficulties in perceived occupational performance and satisfaction in daily life activities, largely due to the various symptoms associated with the disease.

METHODS

Twenty-nine individuals with systemic sclerosis participated in the study. Occupational performance and satisfaction levels were evaluated before and after the program were performed using the Canadian Occupational Performance Measure. The self-management program, guided by the COPM activities, was tailored to the patients' needs and informed by relevant literature. The program consisted of eight sessions over 8 weeks, with one 45-minute session per week.

RESULTS

A statistically significant increase was found in Canadian Occupational Performance Measure performance and satisfaction scores before and after the guided training ( < 0.001). Analysis of the occupation distributions revealed that self-care constituted 31.97%, productivity 45.90%, and leisure time 22.13%.

CONCLUSION

The self-management program delivered via telerehabilitation positively impacted the perceived occupational performance and satisfaction of individuals with systemic sclerosis. It is believed that self-management intervention can be effectively used to enhance the occupational performance and satisfaction of these individuals.

摘要

引言

系统性硬化症患者在日常生活活动中的职业表现和满意度方面存在困难,这主要归因于与该疾病相关的各种症状。

方法

29名系统性硬化症患者参与了该研究。使用加拿大职业表现测量工具在项目实施前后对职业表现和满意度水平进行评估。以加拿大职业表现测量活动为指导的自我管理项目根据患者需求进行定制,并参考了相关文献。该项目在8周内进行8次课程,每周一次,每次45分钟。

结果

在有指导的训练前后,加拿大职业表现测量的表现和满意度得分有统计学意义的显著提高(<0.001)。职业分布分析显示,自我护理占31.97%,生产力占45.90%,休闲时间占22.13%。

结论

通过远程康复提供的自我管理项目对系统性硬化症患者的职业表现和满意度产生了积极影响。据信,自我管理干预可有效用于提高这些患者的职业表现和满意度。

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本文引用的文献

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Best Pract Res Clin Rheumatol. 2021 Sep;35(3):101667. doi: 10.1016/j.berh.2021.101667. Epub 2021 Mar 10.
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