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Capturing learning from public involvement with people experiencing homelessness to help shape new physiotherapy research: Utilizing a reflective model with an under-served, vulnerable population.从无家可归者的公众参与中汲取学习经验，以帮助塑造新的物理治疗研究：利用一个反映模型为服务不足、弱势人群提供服务。
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3
Challenges, approaches and opportunities for Patient and Public Involvement (PPI) in Traumatic Brain Injury (TBI) research.创伤性脑损伤（TBI）研究中患者及公众参与（PPI）面临的挑战、方法与机遇
Br J Neurosurg. 2021 Oct;35(5):651-652. doi: 10.1080/02688697.2021.1922605. Epub 2021 May 4.
4
Exploring the theory, barriers and enablers for patient and public involvement across health, social care and patient safety: a systematic review of reviews.探索患者和公众参与健康、社会关怀和患者安全的理论、障碍和促进因素：系统综述。
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5
Preparing Telemedicine for the Frontlines of Healthcare Equity.为医疗公平的前线做好远程医疗准备。
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6
Traumatic brain injury in homeless and marginally housed individuals: a systematic review and meta-analysis.无家可归和住房不稳定人群的创伤性脑损伤：系统评价和荟萃分析。
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Impact of patient and public involvement on enrolment and retention in clinical trials: systematic review and meta-analysis.患者和公众参与对临床试验入组和保留的影响：系统评价和荟萃分析。
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Estimating the global incidence of traumatic brain injury.估计创伤性脑损伤的全球发病率。
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9
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10
Models and impact of patient and public involvement in studies carried out by the Medical Research Council Clinical Trials Unit at University College London: findings from ten case studies.患者和公众参与伦敦大学学院医学研究理事会临床试验单位开展的研究的模式及影响：十项案例研究的结果
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一名脑损伤幸存者发起成立了一个脑损伤幸存者患者及公众参与小组。

The development of a brain injury survivor patient and public involvement group by a brain injury survivor.

作者信息

Piercy James, Hamilton Colin, Runcie Robert, Deaton Christi, Joannides Alexis J

机构信息

NIHR Brain Injury Medtech Cooperative, University of Cambridge, Cambridge, United Kingdom.

Department of Physiotherapy, Cambridge University Hospitals NHS Foundation Trust, Cambridge, United Kingdom.

出版信息

PLoS One. 2025 May 9;20(5):e0302763. doi: 10.1371/journal.pone.0302763. eCollection 2025.

DOI:10.1371/journal.pone.0302763
PMID:40344003
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12063848/
Abstract

BACKGROUND

Patient and public involvement (PPI) in research is seen as key to ensuring applicability and impact. Undertaking PPI in people after brain injury has long been seen to be a challenge. In 2020 The NIHR Brain Injury MedTech Cooperative developed a programme with the aim of improving PPI involvement, impact and diversity in this population.

METHODS

Through a process of iterative development, a PPI programme was created. It built on an existing underutilised database of people after brain injury and their carers who were interested in engaging with PPI and utilised video-calling software. It was led by a Brain injury Survivor acting as Facilitator with admin support from the MedTech Cooperative.

RESULTS

To date 14 PPI sessions were completed supporting a total of 17 projects. The diversity of the panel members was comparable to that of the population at large. However, further work is needed, especially in engaging people experiencing homelessness, people living outside of England and those with communication impairments. Feedback from researchers was positive and specific impacts are stated.

CONCLUSION

Through the leadership of a facilitator who has an understanding of the lived experience of brain injury a PPI programme has been developed. The use of a video-calling platform enabled a wider representation then a face-to-face group would have and techniques such as shortened sessions and single project presentations ensured engagement and impact.

摘要

背景

患者及公众参与（PPI）研究被视为确保研究适用性和影响力的关键。长期以来，让脑损伤患者参与PPI一直被视为一项挑战。2020年，英国国家卫生研究院脑损伤医疗技术合作组织制定了一项计划，旨在提高该人群中PPI的参与度、影响力和多样性。

方法

通过迭代开发过程，创建了一个PPI计划。该计划基于一个现有的未充分利用的数据库，该数据库包含脑损伤患者及其护理人员，他们有兴趣参与PPI，并利用了视频通话软件。该计划由一名脑损伤幸存者担任主持人，并得到医疗技术合作组织的行政支持。

结果

迄今为止，已完成14次PPI会议，支持了总共17个项目。小组成员的多样性与总体人群相当。然而，还需要进一步开展工作，特别是在吸引无家可归者、居住在英格兰以外的人以及有沟通障碍的人参与方面。研究人员的反馈是积极的，并说明了具体影响。

结论

通过一位了解脑损伤实际生活经历的主持人的引领，制定了一个PPI计划。使用视频通话平台能够实现比面对面小组更广泛的代表性，并且诸如缩短会议时间和单个项目展示等技巧确保了参与度和影响力。