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心理教育对癫痫患儿照顾者的照顾负担、内化耻辱感、焦虑及应对方式的影响:一项随机试点研究

Impact of a Psychoeducation on Caregiver Burden, Internalized Stigma, Anxiety, and Coping in Caregivers of Children With Epilepsy: A Randomized Pilot Study.

作者信息

Kaçan Havva, Sakız Halis

机构信息

Faculty of Health Sciences, Department of Nursing, Kastamonu University, Kastamonu, Turkey.

Department of Educational Sciences, Faculty of Letters, Mardin Artuklu University, Mardin, Turkey.

出版信息

Nurs Health Sci. 2025 Jun;27(2):e70095. doi: 10.1111/nhs.70095.

Abstract

This pilot randomized trial examined the effects of a psychoeducational intervention on caregiving burden, anxiety, internalized stigma, and coping strategies among caregivers of children with epilepsy. Using a randomized design, 54 caregivers were assigned to either an experimental (n = 28) or control (n = 26) group. The 6-week intervention included psychoeducation, emotional support, and stress-management techniques aimed at enhancing caregivers' psychological well-being. Results showed significant reductions in caregiving burden (p = 0.000), internalized stigma (p = 0.000), and anxiety (p = 0.000) in the experimental group, while the control group showed no significant changes. Caregivers in the experimental group also adopted more adaptive coping strategies, including increased self-confidence (p = 0.000) and optimistic approaches (p = 0.001), greater reliance on social support (p = 0.001), and decreased use of helpless (p = 0.000) and submissive coping styles (p = 0.000). These findings demonstrate the feasibility and preliminary efficacy of psychoeducational interventions for improving caregiver well-being and suggest the need for a future large-scale definitive trial to confirm these effects.

摘要

这项先导性随机试验研究了心理教育干预对癫痫患儿照料者的照料负担、焦虑、内化耻辱感及应对策略的影响。采用随机设计,将54名照料者分为实验组(n = 28)或对照组(n = 26)。为期6周的干预包括心理教育、情感支持及压力管理技巧,旨在提高照料者的心理健康水平。结果显示,实验组的照料负担(p = 0.000)、内化耻辱感(p = 0.000)和焦虑(p = 0.000)显著降低,而对照组无显著变化。实验组的照料者还采用了更具适应性的应对策略,包括自信心增强(p = 0.000)和采用乐观方法(p = 0.001)、更多地依赖社会支持(p = 0.001),以及减少无助(p = 0.000)和顺从应对方式的使用(p = 0.000)。这些发现证明了心理教育干预在改善照料者幸福感方面的可行性和初步疗效,并表明有必要开展未来的大规模确定性试验以证实这些效果。

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