Gouws Emile
Department of Inclusive Education, College of Education, University of South Africa, Pretoria, South Africa.
Afr J Disabil. 2025 Apr 14;14:1560. doi: 10.4102/ajod.v14i0.1560. eCollection 2025.
In this article, I reflect on my continuing journey of becoming an autism self-advocate and how this has extended to advocate for the broader neurodiverse community.
I aimed to provide an academic analysis of the value of autism self-advocacy with special reference to building resilience to confront discrimination and advocating for equal opportunities, support and inclusion.
My autoethnographic reflections are fused with those of my co-constructors to present critical incidents that defined my journey of becoming an internationally recognised advocate for autism.
Education has been the transformative force that has changed my life, granting me opportunities to advocate for my broader neurodiverse community on various local and international platforms and guiding me to create an ecosystem of family and professionals who continuously support me and others who are neurodiverse. My advocacy, which aims at raising autism awareness, has changed the perceptions of the community of practice as well as others with an interest in supporting and including individuals living with autism in a significant way.
A network of care and support is required to sustain autism self-advocacy and to build on it to advocate for the broader neurodiverse community.
This demonstrates the need for educating stakeholders to raise their expectations for autistic children and adults and for teachers and psychologists to continue supporting families and children with Autism Spectrum Disorder (ASD) to realise their full human potential.
在本文中,我反思了自己成为一名自闭症自我倡导者的持续历程,以及这一历程如何延伸至为更广泛的神经多样性群体发声。
我的目标是对自闭症自我倡导的价值进行学术分析,特别提及培养应对歧视的韧性以及倡导平等机会、支持和包容。
我将自己的自我民族志反思与共同构建者的反思相结合,呈现那些塑造我成为国际认可的自闭症倡导者历程的关键事件。
教育成为改变我生活的变革力量,为我提供了在各种本地和国际平台上为更广泛的神经多样性群体发声的机会,并引导我创建了一个由家人和专业人士组成的生态系统,他们持续支持我以及其他神经多样性者。我的倡导旨在提高对自闭症的认识,极大地改变了实践社区以及其他有意支持和接纳自闭症患者的人的看法。
需要一个关爱和支持网络来维持自闭症自我倡导,并在此基础上为更广泛的神经多样性群体发声。
这表明有必要教育利益相关者,提高他们对自闭症儿童和成人的期望,并且教师和心理学家要继续支持自闭症谱系障碍(ASD)家庭和儿童,以实现他们的全部人类潜能。