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Autistic Perspectives on the Future of Clinical Autism Research.自闭症患者对临床自闭症研究未来的看法。
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From ivory tower to inclusion: Stakeholders' experiences of community engagement in Australian autism research.从象牙塔到包容:利益相关者参与澳大利亚自闭症研究的社区经验。
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早期职业自闭症研究人员正在改变他们的研究方向:悲剧还是机遇?

Early-Career Autism Researchers Are Shifting Their Research Directions: Tragedy or Opportunity?

作者信息

Tan Diana Weiting

机构信息

Macquarie School of Education, Macquarie University, Sydney, Australia.

School of Psychological Science, The University of Western Australia, Perth, Australia.

出版信息

Autism Adulthood. 2023 Sep 1;5(3):218-224. doi: 10.1089/aut.2023.0021. Epub 2023 Aug 30.

DOI:10.1089/aut.2023.0021
PMID:37663448
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10468548/
Abstract

Early-career researchers (ECRs) are among the most creative, talented, and energetic researchers, and they play an important role in knowledge production and pushing scientific boundaries. Recent debates have implied that many early-career autism researchers are compelled to shift their areas of focus within autism research as a consequence of their work being scrutinized by the autistic and autism communities. In this Perspective, I draw on my own experience as an early-career autism researcher having recently pivoted my research focus to become more aligned with community priorities. I reflect on whether these putative shifts in research direction are, indeed, a tragedy, as has previously been suggested, or, in fact, an opportunity for autism researchers. I argue that pivoting in research is a demonstration of science adapting to the ever-evolving needs in society and changes in our understanding of neurodiversity, neurodivergence, and research methods. While disagreements between the autistic, autism, and research communities may well feel uncomfortable, these tensions also present an opportunity for us-as non-autistic autism researchers-to reflect and to act toward building trust with the community. I recommend three areas for reflections: the purpose of our research, our position of power, and the epistemic limits of our academic expertise. I end by encouraging ECRs to consider taking actions, however small, to lead the charge in improving practices in autism research.

摘要

早期职业研究人员(ECRs)是最具创造力、才华和活力的研究人员之一,他们在知识生产和拓展科学边界方面发挥着重要作用。最近的讨论表明,许多早期职业自闭症研究人员由于其工作受到自闭症患者及其社群的审视,而不得不改变他们在自闭症研究中的重点领域。在这篇观点文章中,我借鉴自己作为一名早期职业自闭症研究人员的经验,我最近已经调整了我的研究重点,使其更符合社群的优先事项。我思考这些所谓的研究方向转变是否真的如之前所认为的那样是一场悲剧,或者实际上对自闭症研究人员来说是一个机会。我认为研究方向的转变表明科学正在适应社会不断变化的需求以及我们对神经多样性、神经差异和研究方法理解的变化。虽然自闭症患者、自闭症社群和研究社群之间的分歧可能让人感觉不舒服,但这些紧张关系也为我们——作为非自闭症的自闭症研究人员——提供了一个反思的机会,并促使我们采取行动与社群建立信任。我建议从三个方面进行反思:我们研究的目的、我们的权力地位以及我们学术专长的认知局限。最后,我鼓励早期职业研究人员考虑采取行动,无论多么微小,带头改进自闭症研究的实践。