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你会向谁倾诉你的听力损失情况?一种针对听力损失成年人的污名化引发的身份威胁模型。

Who do you tell about your hearing loss? A stigma-induced identity-threat model for adults with hearing loss.

作者信息

Ekberg Katie, Nickbakht Mansoureh, Meyer Carly, Waite Monique, Timmer Barbra, Scarinci Nerina, Hickson Louise

机构信息

College of Nursing and Health Sciences, Flinders University, Australia.

Centre for Hearing Research, School of Health and Rehabilitation Sciences, The University of Queensland, Australia.

出版信息

Int J Audiol. 2025 Apr;64(sup1):S65-S70. doi: 10.1080/14992027.2025.2489569. Epub 2025 May 14.

Abstract

OBJECTIVE

This paper collates findings from six studies in the special issue and maps them onto the Major and O'Brien (2005) model for a holistic representation of how adults with hearing loss (HL) experience stigma-induced identity threat, how they respond, and the association with hearing aid (HA) use.

DESIGN

Findings were obtained using a range of methods: qualitative interviews, Ecological Momentary Assessment, and Conversation Analysis in phase 1; and online self-report surveys in phase 2. Data from phase 1 informed the survey used in phase 2.

STUDY SAMPLE

Phase 1 included 20 adults with HL and their significant others (SOs). Phase 2 included 331 adults with HL and 313 SOs.

RESULTS

Findings support the view of stigma being context and relationship specific as suggested by the Major and O'Brien (2005) model. 'Not telling' was found to be a key way that the stigma of HL is responded to in everyday life. HL disclosure, in addition to attitudes towards HAs, stereotypical beliefs, and personal characteristics, were associated with HA use.

CONCLUSIONS

Clinical implications are discussed, including how hearing care professionals might support adults with HL and their SOs who experience stigma related to HL and/or HAs.

摘要

目的

本文整理了特刊中六项研究的结果,并将其与梅杰和奥布赖恩(2005年)的模型进行映射,以全面呈现听力损失(HL)成人如何经历耻辱感引发的身份威胁、他们如何应对以及与助听器(HA)使用之间的关联。

设计

通过一系列方法获取研究结果:第一阶段采用定性访谈、生态瞬时评估和对话分析;第二阶段采用在线自我报告调查。第一阶段的数据为第二阶段使用的调查提供了参考。

研究样本

第一阶段包括20名HL成人及其重要他人(SO)。第二阶段包括331名HL成人和313名SO。

结果

研究结果支持了梅杰和奥布赖恩(2005年)模型所提出的耻辱感具有情境和关系特异性的观点。“不说”被发现是日常生活中应对HL耻辱感的关键方式。HL的披露,除了对HA的态度、刻板信念和个人特征外,还与HA的使用有关。

结论

讨论了临床意义,包括听力保健专业人员如何支持经历与HL和/或HA相关耻辱感的HL成人及其SO。

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