Ekberg Katie, Hickson Louise
Centre for Hearing Research, School of Health and Rehabilitation Sciences, The University of Queensland, St Lucia, Australia.
Int J Audiol. 2023 Dec 28:1-11. doi: 10.1080/14992027.2023.2293651.
Stigma has long been implicated as a reason why adults with acquired hearing loss are slow to seek help and for sub-optimal uptake of hearing devices. However, the field has not developed a comprehensive understanding of why stigma occurs, nor has it related this comprehensive knowledge to a theoretical framework.
This special issue presents results from a two-phase, multi-method study to systematically investigate how stigma is experienced by adults with hearing loss and their families, how they manage it in everyday life, and how these experiences relate to the decision to wear hearing aids.
Phase 1 of the study involved 20 dyads of adults with hearing loss and their family members. Phase 2 involved 331 adults with hearing loss and 313 family members.
Results of the study are presented in each of the subsequent papers that are part of this special issue. Results are mapped onto the Major and O'Brien model of stigma-induced identity threat in each paper.
This paper provides an introduction to the Special Issue and describes the methods for the overall study that is the focus of the papers within the issue.
长期以来,耻辱感一直被认为是后天性听力损失的成年人寻求帮助缓慢以及听力设备使用不理想的一个原因。然而,该领域尚未对耻辱感产生的原因形成全面的理解,也未将这一全面的认识与理论框架联系起来。
本期特刊展示了一项两阶段、多方法研究的结果,该研究旨在系统调查有听力损失的成年人及其家人如何体验耻辱感,他们在日常生活中如何应对耻辱感,以及这些经历与佩戴助听器的决定之间有何关联。
研究的第一阶段涉及20对有听力损失的成年人及其家庭成员。第二阶段涉及331名有听力损失的成年人和313名家庭成员。
研究结果在构成本期特刊一部分的后续各篇论文中呈现。每篇论文都将研究结果映射到耻辱感引发的身份威胁的梅杰和奥布赖恩模型上。
本文为本期特刊提供了引言,并描述了作为本期论文重点的整体研究方法。