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运用生态瞬时评估法探究成年后天性听力损失患者在现实世界中的耻辱感经历。

Using Ecological Momentary Analysis to explore stigma experiences in the real world for adults with acquired hearing loss.

作者信息

Timmer Barbra H B, Ekberg Katie, Meyer Carly, Waite Monique, Scarinci Nerina, Nickbakht Mansoureh, Hickson Louise

机构信息

Centre for Hearing Research, School of Health and Rehabilitation Sciences, The University of Queensland, Australia.

Sonova AG, Stäfa, Switzerland.

出版信息

Int J Audiol. 2025 Apr;64(sup1):S28-S38. doi: 10.1080/14992027.2024.2418970. Epub 2024 Nov 4.

Abstract

OBJECTIVE

The aim of this study was to use Ecological Momentary Assessment (EMA) to capture how stigma-induced identity threat is experienced by adults with hearing loss and how they respond to such threats in daily life.

DESIGN AND STUDY SAMPLE

Twenty adults with hearing loss from 53 to 88 years (mean age of 69.4 years) completed a range of demographic and stigma questionnaires in the laboratory and, over a two-week period, answered daily EMA surveys.

RESULTS

A total of 633 EMA surveys were collected. Five participants reported 13 listening events in which they experienced stigma. These events were typically when conversing with family or friends who were aware of the adults' hearing loss.

CONCLUSIONS

The number of individual stigma experiences captured by EMA were low, when viewed across a large number of social interactions. However, as a group, a quarter of the participants in this study experienced stigma over a two-week period, typically from others close to them. This suggests that stigma experiences may be a regular occurrence for some adults with hearing loss.

摘要

目的

本研究旨在运用生态瞬时评估法(EMA),了解成年听力损失患者如何体验到由污名引发的身份威胁,以及他们在日常生活中如何应对此类威胁。

设计与研究样本

20名年龄在53至88岁(平均年龄69.4岁)的成年听力损失患者在实验室完成了一系列人口统计学和污名调查问卷,并在两周时间内每日回答EMA调查。

结果

共收集到633份EMA调查问卷。5名参与者报告了13次他们遭遇污名的听力事件。这些事件通常发生在与知晓其听力损失的家人或朋友交谈时。

结论

从大量社交互动来看,EMA捕捉到的个体污名经历数量较少。然而,作为一个群体,本研究中四分之一的参与者在两周内经历了污名,通常来自与他们关系密切的人。这表明污名经历可能是一些成年听力损失患者的常见情况。

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