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不同种族和社会经济背景的患者及社区中的健康信息寻求行为与健康信息偏好:一项定性研究

Health Information Seeking Behavior and Health Information Preferences Among Ethnically and Socioeconomically Diverse Patients and Communities: A Qualitative Study.

作者信息

Hummel Bryn, van Schalkwijk Dinah L, Mommersteeg Paula M C, van Valkengoed Irene G M

机构信息

Amsterdam UMC, Location AMC, The Netherlands.

Tilburg University, The Netherlands.

出版信息

J Prim Care Community Health. 2025 Jan-Dec;16:21501319251332048. doi: 10.1177/21501319251332048. Epub 2025 May 14.

Abstract

INTRODUCTION

Early recognition of ischemic heart disease (IHD) is important, yet, delays still occur due to low symptom recognition. Accessible information may improve symptom recognition, however, it is unclear how information should be provided to reach different populations. Hence, we studied health information seeking behavior (HISB) and preferences, in ethnically-diverse women and men in the Netherlands.

METHODS

We conducted 31 patients interviews, seven key figure interviews and one focus group with key figures (community leaders and physicians), and eight focus groups with non-patients (N = 44) about HISB and health information preferences. We thematically analyzed the data using inductive coding.

RESULTS

We found minimal variation in HISB, as most patients did not seek information about symptoms. Participants required information about cardiac symptoms, risk factors, when to seek care, prevention, and navigating the Dutch healthcare system. Several information provision strategies emerged, with preferences varying somewhat across ethnic groups and age groups. Ethnic minority participants described a preference for culturally-sensitive community-based live information provision. Other strategies included media, social media, and native Dutch participants mentioned public spaces and healthcare settings.

CONCLUSION

HISB was limited in this ethnically-diverse population. Different strategies may be employed to promote symptom recognition, particularly co-created culturally-sensitive interventions.

摘要

引言

早期识别缺血性心脏病(IHD)很重要,然而,由于症状识别率低,仍会出现延误情况。可获取的信息可能会提高症状识别率,但是,尚不清楚应如何提供信息以覆盖不同人群。因此,我们研究了荷兰不同种族的女性和男性的健康信息寻求行为(HISB)及偏好。

方法

我们对31名患者进行了访谈,对7名关键人物(社区领袖和医生)进行了关键人物访谈,并与关键人物进行了1次焦点小组讨论,还与非患者(N = 44)进行了8次焦点小组讨论,内容涉及健康信息寻求行为和健康信息偏好。我们使用归纳编码对数据进行了主题分析。

结果

我们发现健康信息寻求行为的差异极小,因为大多数患者并未寻求有关症状的信息。参与者需要有关心脏症状、危险因素、何时就医、预防以及荷兰医疗保健系统导航等方面的信息。出现了几种信息提供策略,不同种族和年龄组的偏好略有不同。少数族裔参与者表示倾向于以社区为基础、具有文化敏感性的现场信息提供方式。其他策略包括媒体、社交媒体,荷兰本地参与者提到了公共场所和医疗机构。

结论

在这个种族多样化的人群中,健康信息寻求行为有限。可以采用不同的策略来促进症状识别,特别是共同创建具有文化敏感性的干预措施。

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