Pham Angela, Chaudhry Naueen A, Molina Isaac, Setya Aniruddh, Flint Andrew, Dang Anna, Wang Laurie, Potlach Tomas, Li Qian, Guo Yi, McGetrick Molly, Beasley Genie, Estores Irene, Keefer Laurie, Dubinsky Marla, Zimmermann Ellen M
Department of Medicine College of Medicine University of Florida Gainesville Florida USA.
Department of Pediatrics College of Medicine University of Florida Gainesville Florida USA.
JPGN Rep. 2025 Jan 13;6(2):91-98. doi: 10.1002/jpr3.12162. eCollection 2025 May.
Little is known about the experience of college students with inflammatory bowel disease (IBD) and the factors associated with transition readiness, academic adjustment, and alternatively, those associated with academic hardship and attrition.
Survey-based cross-sectional studies, including those addressing disease-specific quality of life (Short Inflammatory Bowel Disease Questionnaire), IBD disease activity (Harvey-Bradshaw Index and Patient Simple Clinical Colitis Activity Index), college adjustment (Student Adjustment to College Questionnaire), transition readiness (Transition Readiness Assessment Questionnaire [TRAQ]), and self-efficacy (inflammatory bowel disease self-efficacy scale).
The surveys were completed by 135 participants (59 IBD patients [37 Crohn's disease and 22 ulcerative colitis]; 76 controls). Participants with IBD were matched with respect to age, gender, academic status, and involvement in extracurricular activities. Participants endorsed making important college decisions associated with their disease and were significantly more likely to live at home ( < 0.001), take fewer credits ( < 0.02), and more likely than controls to have their education interrupted ( < 0.0005). Participant age at diagnosis was an important factor associated with college adjustment, with older age at diagnosis having the most association with the ability to adjust to college life. As expected based on prior literature, TRAQ scores suggested better than expected transition readiness in college students with IBD ( < 0.0006) with subscores revealing that female students are better at managing health issues and daily activities.
IBD affects the college experience of students-patients significantly and can have life-long implications. Newly diagnosed students are at risk of poor college adjustment impacting academic performance and their future success. Male students are at greater risk than female students of poor transitioning to adult IBD care. Students with IBD should receive enhanced and age-specific modern IBD care.
对于患有炎症性肠病（IBD）的大学生的经历以及与过渡准备、学业适应相关的因素，或者与学业困难和辍学相关的因素，我们了解甚少。
基于调查的横断面研究，包括那些针对特定疾病的生活质量（简短炎症性肠病问卷）、IBD疾病活动度（哈维 - 布拉德肖指数和患者简易临床结肠炎活动指数）、大学适应（学生对大学的适应问卷）、过渡准备（过渡准备评估问卷[TRAQ]）以及自我效能感（炎症性肠病自我效能量表）的研究。
135名参与者（59名IBD患者[37名克罗恩病患者和22名溃疡性结肠炎患者]；76名对照者）完成了调查。IBD患者在年龄、性别、学业状况和参与课外活动方面进行了匹配。参与者认可做出与他们疾病相关的重要大学决策，并且显著更有可能居家生活（<0.001）、修读较少学分（<0.02），并且比对照者更有可能中断学业（<0.0005）。诊断时的参与者年龄是与大学适应相关的一个重要因素，诊断时年龄较大与适应大学生活的能力关联最大。正如基于先前文献所预期的那样，TRAQ分数表明患有IBD的大学生的过渡准备情况优于预期（<0.0006），子分数显示女学生在管理健康问题和日常活动方面表现更好。
IBD对学生患者的大学经历有显著影响，并且可能产生终身影响。新诊断的学生面临大学适应不良的风险，这会影响学业成绩和他们未来的成功。男学生比女学生在向成人IBD护理过渡方面面临更大风险。患有IBD的学生应接受强化的、针对特定年龄的现代IBD护理。
