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“我们并非真的热衷于提供帮助,而是热衷于变得有用”:支持智障成年人生活中归属感机会的服务提供者实践。

'We're Not Really Into Helping, We're Into Being Useful': Service Provider Practices That Support Belonging Opportunities in the Lives of Adults Labelled With Intellectual Disabilities.

作者信息

Reeves Paige, McConnell David, Phelan Shanon K

机构信息

Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, Alberta, Canada.

Faculty of Health, Dalhousie University, Halifax, Nova Scotia, Canada.

出版信息

J Appl Res Intellect Disabil. 2025 May;38(3):e70070. doi: 10.1111/jar.70070.

DOI:10.1111/jar.70070
PMID:40396555
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12093907/
Abstract

BACKGROUND

Social inclusion focussed on belonging is increasingly emphasised by disability advocates and policymakers, yet belonging often remains absent for adults labelled with intellectual disabilities. People labelled with intellectual disabilities often rely on service providers to support their belonging.

METHODS

In this critically informed ethnographic work, we draw on interviews with nine disability services leaders and prolonged participatory field explorations with five adults labelled with intellectual disabilities, their friends and support workers to explore how service providers support opportunities for belonging.

RESULTS

Reflexive thematic analysis generated three themes: centering inclusion, belonging and rights; creating opportunities for self-exploration and 'dreaming'; and facilitating connections to people and place.

CONCLUSIONS

Findings highlight supporting belonging as complex work that requires a relational understanding of autonomy, work environments that support reflexivity, and the redistribution of resources to allow for higher staff wages, larger individual support contracts and funding for staff training and post-secondary education.

摘要

背景

残疾权益倡导者和政策制定者越来越强调以归属感为重点的社会包容,但对于被贴上智力残疾标签的成年人来说,归属感往往仍然缺失。被贴上智力残疾标签的人通常依靠服务提供者来支持他们的归属感。

方法

在这项具有批判性的人种志研究中,我们对九位残疾服务领导者进行了访谈,并与五位被贴上智力残疾标签的成年人、他们的朋友和支持人员进行了长期的参与式实地探索,以探讨服务提供者如何支持获得归属感的机会。

结果

反思性主题分析产生了三个主题:以包容、归属感和权利为核心;创造自我探索和“梦想”的机会;促进与人和地方的联系。

结论

研究结果强调,支持归属感是一项复杂的工作,需要对自主性有相互关系的理解、支持反思性的工作环境,以及重新分配资源,以提高员工工资、增加个人支持合同,并为员工培训和高等教育提供资金。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/322b/12093907/fcdcad6603fc/JAR-38-e70070-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/322b/12093907/25797a0b5589/JAR-38-e70070-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/322b/12093907/fcdcad6603fc/JAR-38-e70070-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/322b/12093907/25797a0b5589/JAR-38-e70070-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/322b/12093907/fcdcad6603fc/JAR-38-e70070-g001.jpg

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本文引用的文献

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Perspectives of adults with intellectual disabilities and key individuals on community participation in inclusive settings: A Canadian exploratory study.智障成年人与关键人物对在包容性环境中参与社区活动的看法:一项加拿大的探索性研究。
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Loneliness and how to counter it: People with intellectual disability share their experiences and ideas.孤独以及如何应对孤独:智障人士分享他们的经历与想法。
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How do people with intellectual disabilities understand friendship? A systematic meta-synthesis.
智力残疾者如何理解友谊?系统元分析。
J Appl Res Intellect Disabil. 2024 Jul;37(4):e13244. doi: 10.1111/jar.13244.
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Moving beyond Inclusion to Belonging.从包容走向归属。
Int J Environ Res Public Health. 2023 Oct 10;20(20):6907. doi: 10.3390/ijerph20206907.
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The (radical) role of belonging in shifting and expanding understandings of social inclusion for people labelled with intellectual and developmental disabilities.归属感在转变和拓展对被贴上智力和发育障碍标签者的社会包容理解方面所起的(根本性)作用。
Sociol Health Illn. 2023 Feb;45(2):317-330. doi: 10.1111/1467-9566.13574. Epub 2022 Oct 28.
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The devolution of eugenic practices: Sexual and reproductive health and oppression of people with intellectual disability.优生实践的演变:性与生殖健康和智力残疾人士的压迫。
Soc Sci Med. 2022 Apr;298:114877. doi: 10.1016/j.socscimed.2022.114877. Epub 2022 Mar 3.
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Facilitators of Sense of Belonging Among People With Intellectual and Developmental Disabilities: A Systematic Review.促进智障和发育障碍人士归属感的因素:系统综述。
J Intellect Disabil. 2023 Jun;27(2):516-538. doi: 10.1177/17446295211068424. Epub 2022 Mar 10.
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(Re)imagining inclusion to foster belonging in the lives of disabled children and youth.重新构想包容性,以促进残疾儿童和青少年生活中的归属感。
Lancet Child Adolesc Health. 2022 Feb;6(2):77-78. doi: 10.1016/S2352-4642(21)00371-0. Epub 2021 Dec 1.
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Social networks and people with intellectual disabilities: A systematic review.社交网络与智障人士:系统综述
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