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本文引用的文献

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Digital Health Needs and Preferences During Pregnancy and the Postpartum Period: Mixed Methods Study.孕期及产后数字健康需求与偏好:混合方法研究
JMIR Form Res. 2024 Jan 12;8:e48960. doi: 10.2196/48960.
2
Black feminist theory in maternal health research: A review of concepts and future directions.孕产妇健康研究中的黑人女性主义理论:概念与未来方向综述
Sociol Compass. 2023 May;17(5). doi: 10.1111/soc4.13083. Epub 2023 Feb 27.
3
Barriers and facilitators to utilizing digital health technologies by healthcare professionals.医疗保健专业人员使用数字健康技术的障碍与促进因素。
NPJ Digit Med. 2023 Sep 18;6(1):161. doi: 10.1038/s41746-023-00899-4.
4
Trends in State-Level Maternal Mortality by Racial and Ethnic Group in the United States.美国按种族和民族划分的州级孕产妇死亡率趋势。
JAMA. 2023 Jul 3;330(1):52-61. doi: 10.1001/jama.2023.9043.
5
The Experiences of Black Community-Based Doulas as They Mitigate Systems of Racism: A Qualitative Study.黑人社区助产士应对种族主义制度的经历:一项定性研究。
J Midwifery Womens Health. 2023 Jul-Aug;68(4):466-472. doi: 10.1111/jmwh.13493. Epub 2023 Apr 14.
6
Racial disparities in national maternal mortality trends in the United States from 2000 to 2019: a population-based study on 80 million live births.2000 年至 2019 年美国全国孕产妇死亡率趋势中的种族差异:基于 8000 万活产人口的研究。
Arch Gynecol Obstet. 2024 Apr;309(4):1315-1322. doi: 10.1007/s00404-023-06999-6. Epub 2023 Mar 18.
7
Barriers to and Facilitators of Digital Health Among Culturally and Linguistically Diverse Populations: Qualitative Systematic Review.文化和语言多样化人群中数字健康的障碍和促进因素:定性系统评价。
J Med Internet Res. 2023 Feb 28;25:e42719. doi: 10.2196/42719.
8
Reflections on Digital Maternal and Child Health Support for Mothers and Community Health Workers in Rural Areas of Limpopo Province, South Africa.南非林波波省农村地区的母亲和社区卫生工作者对数字母婴健康支持的反思。
Int J Environ Res Public Health. 2023 Jan 19;20(3):1842. doi: 10.3390/ijerph20031842.
9
Listen to the Whispers before They Become Screams: Addressing Black Maternal Morbidity and Mortality in the United States.在悄声细语变成呐喊之前倾听:解决美国黑人孕产妇的发病和死亡问题。
Healthcare (Basel). 2023 Feb 3;11(3):438. doi: 10.3390/healthcare11030438.
10
Promoting racial equity in digital health: applying a cross-disciplinary equity framework.促进数字健康领域的种族公平:应用跨学科公平框架。
NPJ Digit Med. 2023 Jan 11;6(1):3. doi: 10.1038/s41746-023-00747-5.

黑人孕妇使用数字健康进行高血压疾病自我管理的障碍与促进因素

Barriers and Facilitators of Digital Health Use for Self-Management of Hypertensive Disorders by Black Pregnant Women.

作者信息

Foreman Morgan A, Ross Angela, Burgess Angela P H, Myneni Sahiti, Franklin Amy

机构信息

UTHealth Houston McWilliams School of Biomedical Informatics, Houston, Texas.

UTHealth Houston McGovern School of Medicine, Houston, Texas.

出版信息

AMIA Annu Symp Proc. 2025 May 22;2024:433-442. eCollection 2024.

PMID:40417563
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12099333/
Abstract

Although digital health tools are increasingly common for managing health conditions, these applications are often developed without consideration of differences across user populations. A reproducible framework is needed to support tailoring applications to include cultural considerations, potentially leading to better adoption and more effective use. As a first step, this study captures a snapshot of Black women's barriers and facilitators in using digital health products for self-management of hypertensive disorders of pregnancy (HDP). One-on-one semi-structured interviews were conducted with 17 Black pregnant women with HDP. We established a unique model for cultural tailoring with these experiences using Black feminist theory and the CDC's Social-Ecological Model (SEM). 38 themes across the four levels of SEM were found through grounded theory. These themes can inform the feature development of a digital health intervention. Future work will instantiate and validate a framework that provides theoretical constructs for developing culturally tailored digital health interventions.

摘要

尽管数字健康工具在管理健康状况方面越来越普遍,但这些应用程序的开发往往没有考虑到不同用户群体之间的差异。需要一个可重复的框架来支持对应用程序进行定制,使其纳入文化考量因素,这可能会带来更好的接受度和更有效的使用。作为第一步,本研究对黑人女性在使用数字健康产品进行妊娠期高血压疾病(HDP)自我管理时所面临的障碍和促进因素进行了简要描述。对17名患有HDP的黑人孕妇进行了一对一的半结构化访谈。我们利用黑人女性主义理论和美国疾病控制与预防中心的社会生态模型(SEM),根据这些经验建立了一个独特的文化定制模型。通过扎根理论在SEM的四个层面上发现了38个主题。这些主题可为数字健康干预措施的功能开发提供参考。未来的工作将实例化并验证一个框架,该框架为开发具有文化针对性的数字健康干预措施提供理论架构。