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儿童化脓性汗腺炎的健康相关生活质量及临床特征

Health-related quality of life and clinical characteristics of hidradenitis suppurativa in a pediatric population.

作者信息

Dattolo Anna, Sampogna Francesca, Mastroeni Simona, Fania Luca, Ciccone Davide, Abeni Damiano

机构信息

Clinical Epidemiology Unit, Istituto Dermopatico dell'Immacolata (IDI-IRCCS), Rome.

Clinical Epidemiology Unit, Istituto Dermopatico dell'Immacolata (IDI-IRCCS), Rome; National Centre for Disease Prevention and Health Promotion, Italian National Institute of Health, Rome.

出版信息

Dermatol Reports. 2025 May 23;17(2). doi: 10.4081/dr.2024.10086. Epub 2024 Oct 16.

Abstract

Hidradenitis suppurativa (HS) is a chronic, skin-immunemediated inflammatory disease (sIMID), with a high impact on quality of life (QoL). Data on clinical management, comorbidities, psychosocial burden, and psychiatric disorders in pediatric patients with HS are scarce. The aim of our study was to compare clinical characteristics and patient-reported outcome measures (PROMs) for health-related quality of life (HRQoL) in adult and pediatric patients with HS. Data were collected on 601 patients with HS, 60 of whom (10.0%) were pediatric. The psychological and HRQoL impact was generally higher in adults than children, but it was also noteworthy in pediatric patients. Early diagnosis and interventions based on education for the patients and their families and psychological support are the key to optimal disease management and adherence. Our study underlines the need for screening for HS-associated psychiatric disorders and for using age-specific tools to evaluate HRQoL. A multidisciplinary approach involving several specialists is needed, as well as liaison with primary care specialists to improve care and management of comorbidities and psychological issues in patients with HS.

摘要

化脓性汗腺炎(HS)是一种慢性皮肤免疫介导的炎症性疾病(sIMID),对生活质量(QoL)有很大影响。关于小儿HS患者的临床管理、合并症、心理社会负担和精神障碍的数据很少。我们研究的目的是比较成年和小儿HS患者的临床特征以及患者报告的健康相关生活质量(HRQoL)结局指标(PROMs)。收集了601例HS患者的数据,其中60例(10.0%)为小儿患者。成人的心理和HRQoL影响通常高于儿童,但在小儿患者中也值得关注。基于对患者及其家属的教育和心理支持的早期诊断和干预是实现最佳疾病管理和依从性的关键。我们的研究强调了筛查HS相关精神障碍以及使用特定年龄工具评估HRQoL的必要性。需要一种涉及多个专科医生的多学科方法,以及与初级保健专科医生联络,以改善HS患者合并症和心理问题的护理和管理。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/606f/12172423/4bc2e1b4872a/dr-17-2-10086-g001.jpg

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