Suppr超能文献

利用技术为农村社区的照顾者提供个性化的喘息机会。

Using technology to provide individualized respite for caregivers in rural communities.

作者信息

Weiss Linda, Battaglia Ann, Daniel Sheaba, Conti Ashley, Jasani Foram, Tyler John

机构信息

Center for Evaluation and Applied Research, The New York Academy of Medicine, New York, NY, United States.

Healthy Community Alliance, Gowanda, NY, United States.

出版信息

Front Health Serv. 2025 May 15;5:1575763. doi: 10.3389/frhs.2025.1575763. eCollection 2025.

Abstract

INTRODUCTION

Caregiving for older adults-by family and friends-is an essential component of the U.S. health and long-term care systems. Though often rewarding, caregiving is associated with higher rates of poor health. Respite is valued by caregivers and associated with positive outcomes; however, access is limited. Exhale-The Family Caregiver Initiative, known as Exhale, was established to support the development of respite programming consistent with local priorities.

METHODS

Exhale respite programs participate in an evaluation, which includes caregiver assessments. This paper focuses on results from one Exhale-supported program, Caregiver Tech Solutions (CTS). CTS provides digital technology and coaching to caregivers in rural New York, offering an alternative to place-based respite and allowing caregivers to achieve short breaks from tasks or worries within their homes, on their terms.

RESULTS

Evaluation findings show that most CTS caregivers were children of the care recipients and cared for someone age 75+. Most had not participated in a respite program previously. Significant increases in respite were reported at follow-up: 25% of participants reported respite "every day or almost every day" at follow-up, compared to 12% at baseline. There were also significant declines in caregiver burden.

CONCLUSIONS

CTS is not unique in use of electronic resources; however, literature remains sparse. Furthermore, pairing technology with coaching is uncommon. Finally, the outcomes demonstrated by CTS counter perceptions that technology-based solutions are not appropriate for older adults or in rural communities. Rather, flexible programs such as CTS represent a promising approach to addressing the needs of rural caregivers.

摘要

引言

家人和朋友对老年人的照料是美国卫生与长期护理系统的重要组成部分。尽管照料往往会带来回报,但它与较高的健康不佳发生率相关。喘息服务受到照料者重视且与积极结果相关;然而,其可及性有限。“呼气——家庭照料者倡议”(简称“呼气”)旨在支持与当地优先事项相一致的喘息服务项目的发展。

方法

“呼气”喘息服务项目参与了一项评估,其中包括照料者评估。本文重点关注一个由“呼气”支持的项目——照料者技术解决方案(CTS)的结果。CTS为纽约农村地区的照料者提供数字技术和指导,提供了一种替代场所式喘息服务的方式,使照料者能够按照自己的方式在家中从任务或担忧中短暂解脱。

结果

评估结果显示,大多数CTS照料者是受照料者的子女,照料的是75岁及以上的老人。大多数人此前未曾参与过喘息服务项目。随访时报告的喘息服务显著增加:25%的参与者在随访时表示“每天或几乎每天”都有喘息服务,而基线时为12%。照料者负担也显著减轻。

结论

CTS在利用电子资源方面并非独一无二;然而,相关文献仍然稀少。此外,将技术与指导相结合并不常见。最后,CTS所展示的结果反驳了基于技术的解决方案不适用于老年人或农村社区的观点。相反,像CTS这样的灵活项目是满足农村照料者需求的一种有前景的方法。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7bf6/12119459/2bc7b617757b/frhs-05-1575763-g001.jpg

相似文献

1
Using technology to provide individualized respite for caregivers in rural communities.
Front Health Serv. 2025 May 15;5:1575763. doi: 10.3389/frhs.2025.1575763. eCollection 2025.
2
Caregiver- and patient-directed interventions for dementia: an evidence-based analysis.
Ont Health Technol Assess Ser. 2008;8(4):1-98. Epub 2008 Oct 1.
5
Systematic review of respite care in the frail elderly.
Health Technol Assess. 2009 Apr;13(20):1-224, iii. doi: 10.3310/hta13200.
6
WHO, WHEN, HOW: a scoping review on flexible at-home respite for informal caregivers of older adults.
BMC Health Serv Res. 2024 Jun 26;24(1):767. doi: 10.1186/s12913-024-11058-0.
8
Predictors of Unmet Need Among Informal Caregivers.
J Gerontol B Psychol Sci Soc Sci. 2020 Nov 13;75(10):2181-2192. doi: 10.1093/geronb/gbz165.
9
Caregiver respite: coming back after being away.
Perspectives. 2000 Winter;24(4):10-20.
10
Respite care services for children with special healthcare needs: Parental perceptions.
J Spec Pediatr Nurs. 2018 Jul;23(3):e12217. doi: 10.1111/jspn.12217. Epub 2018 Apr 26.

本文引用的文献

2
Patient, Caregiver, and Clinician Perspectives on the Time Burdens of Cancer Care.
JAMA Netw Open. 2024 Nov 4;7(11):e2447649. doi: 10.1001/jamanetworkopen.2024.47649.
3
Feasibility and acceptability of virtual programs for people with dementia and their caregivers.
BMC Geriatr. 2024 Sep 25;24(1):783. doi: 10.1186/s12877-024-05375-6.
5
Unpaid Family Caregiving-The Next Frontier of Gender Equity in a Postpandemic Future.
JAMA Health Forum. 2023 Jun 2;4(6):e231310. doi: 10.1001/jamahealthforum.2023.1310.
9
Family Caregiving for Older Adults.
Annu Rev Psychol. 2020 Jan 4;71:635-659. doi: 10.1146/annurev-psych-010419-050754.
10
Multifactorial Examination of Caregiver Burden in a National Sample of Family and Unpaid Caregivers.
J Am Geriatr Soc. 2019 Feb;67(2):277-283. doi: 10.1111/jgs.15664. Epub 2018 Nov 19.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验