Sukkar Maria B, Ainley Rosemary, Barrett Claire, Bond Stephanie, Bradbury Linda A, Briggs Andrew M, Brown Angela, Brown Courtney, Buchbinder Rachelle, Carroll Lisa, Cheers Jessica, Grainger Rebecca, Habib Pauline, Hardy Louise, Holland Justin J, Hollins Tony, James Rebecca, Knapp Donna, Liew David F L, March Lyn, Martens David, McCrum Carol, Neuen Dennis R, Ong Jonathan, Proudman Susanna M, Rowett Debra, Rudd Tracey, Schot Sabina, Squance Marline L, Turner Deborah E, Whittle Samuel L, Wright Shirani A, Keen Helen, Hill Catherine L
M.B. Sukkar, PhD, T. Rudd, B.Pharm, Australian Rheumatology Association, Sydney, Australia.
R. Ainley, Dip. Bus. Admin., CreakyJoints Australia, and Global Healthy Living Foundation Australia, Chatswood, and Young Women's Arthritis Support Group Australia, and Sydney Partnership for Health, Education, Research and Enterprise, Musculoskeletal Health Clinical Academic Group, Consumer Community Council, Sydney, Australia.
J Rheumatol. 2025 Sep 1;52(9):883-892. doi: 10.3899/jrheum.2024-1034.
To develop a quality standard, termed a Clinical Care Standard (CCS), for the diagnosis and management of rheumatoid arthritis (RA).
A Working Group with consumer representation cocreated guiding principles and quality statements for RA care through a series of workshops. The process was informed by consumer recommendations, clinical practice guidelines, and international quality criteria. A national survey of healthcare professionals (HCPs) and consumers was conducted to establish consensus. For each quality statement, respondents were asked to indicate, on a scale of 1-9, (1) if it is a priority area for improvement in RA care, and (2) their agreement with the content of the statement. For (1) and (2), respectively, scores between 1 and 4 indicated it was not a priority and disagreement; 5 and 6 indicated it was important but not critical and moderate agreement; and 7 to 9 indicated it was high priority and agreement. Criteria for inclusion were a mean score ≥ 7 for priority and a mean score ≥ 7 for content.
The Working Group formulated 13 quality statements and established 7 guiding principles for RA care. The survey was completed by 605 consumers and 308 HCPs. The predefined criteria for inclusion were met by 12/13 quality statements.
The Australian Rheumatology Association has developed the first CCS for RA in Australia. This standard will serve as an important lever for HCPs and services, consumer organizations, and policy makers to improve the quality of care for adults with RA.
制定一项用于类风湿关节炎（RA）诊断和管理的质量标准，即临床护理标准（CCS）。
一个有消费者代表参与的工作组通过一系列研讨会共同制定了RA护理的指导原则和质量声明。该过程参考了消费者建议、临床实践指南和国际质量标准。对医疗保健专业人员（HCPs）和消费者进行了全国性调查以达成共识。对于每项质量声明，要求受访者在1至9的量表上表明：（1）它是否是RA护理中需要改进的优先领域；（2）他们对声明内容的认同程度。对于（1）和（2），分数在1至4分别表示不是优先领域且不同意；5和6表示重要但不关键且有适度认同；7至9表示是高度优先且认同。纳入标准是优先领域的平均得分≥7且内容的平均得分≥7。
工作组制定了13项质量声明并确立了7项RA护理指导原则。605名消费者和308名HCPs完成了调查。13项质量声明中有12项符合预先设定的纳入标准。
澳大利亚风湿病协会在澳大利亚制定了首个RA的CCS。该标准将成为HCPs及服务机构、消费者组织和政策制定者提高成年RA患者护理质量的重要手段。
