Kim Yumi, Barstow Elizabeth A, Lai Byron, Pekmezi Dorothy W, Young Hui-Ju, Wilroy Jereme, Niranjan Soumya J, Rimmer James H, Mehta Tapan
Department of Physical Medicine and Rehabilitation, Heersink School of Medicine, University of Alabama at Birmingham, Birmingham, AL.
University of Alabama at Birmingham Research Collaborative, School of Health Professions, University of Alabama at Birmingham, Birmingham, AL.
Arch Rehabil Res Clin Transl. 2025 Jan 19;7(1):100423. doi: 10.1016/j.arrct.2024.100423. eCollection 2025 Mar.
(1) To examine the experiences and perceptions of people with multiple sclerosis (MS) who previously completed a 3-month tele-exercise program; (2) to identify modifiable factors regarding the program components and implementation procedures that could be used to develop an adaptive tele-exercise intervention.
A qualitative study using a semistructured interview guide.
An extension of a comparative effectiveness trial delivered for 761 people with MS between 2016 and 2021. Interviews were conducted over Zoom or phone.
Twenty-two adults with MS who completed the 3-month program (age range, 24-67y, 86% women, 73% Caucasian, 68% relapsing-remitting MS). Participants presented a wide range of mobility disabilities, ranging from no mobility limitation to wheelchair or scooter (n=22).
Not applicable.
Thematic analysis of the transcribed interview led to the identification of desirable components and delivery mechanisms of the tele-exercise program.
Our analysis indicated the importance of individualized and ongoing modification of exercise program content to accommodate changes in participants' functional abilities and health status. Participants reported an ideal timepoint of human support, preferably every 3 weeks, via phone or videoconference calls to capture the intervention modification needs (eg, exercise position, intensity, and clarification of exercise instruction). We further identified desirable components for behavioral modifications, such as inclusion of an exercise companion and self-monitoring tool and postintervention resources for sustaining exercise participation during follow-up periods.
The findings of this study offer insights into tailoring future adaptive tele-exercise intervention designs aimed at promoting engaging and sustainable exercise participation in people with MS.
（1）调查先前完成了为期3个月远程锻炼计划的多发性硬化症（MS）患者的经历和看法；（2）确定与计划组成部分和实施程序相关的可修改因素，这些因素可用于制定适应性远程锻炼干预措施。
采用半结构化访谈指南的定性研究。
2016年至2021年期间为761名MS患者进行的一项比较效果试验的扩展。访谈通过Zoom或电话进行。
22名完成了为期3个月计划的成年MS患者（年龄范围24 - 67岁，86%为女性，73%为白种人，68%为复发缓解型MS）。参与者表现出广泛的行动能力残疾，从无行动限制到使用轮椅或踏板车（n = 22）。
不适用。
对转录访谈进行主题分析，以确定远程锻炼计划的理想组成部分和实施机制。
我们的分析表明，对锻炼计划内容进行个性化和持续修改以适应参与者功能能力和健康状况变化的重要性。参与者报告了一个理想的人力支持时间点，最好每3周一次，通过电话或视频会议来捕捉干预修改需求（例如锻炼姿势、强度以及锻炼指导的澄清）。我们进一步确定了行为改变的理想组成部分，例如纳入锻炼伙伴和自我监测工具，以及干预后资源，以便在随访期间维持锻炼参与度。
本研究结果为量身定制未来适应性远程锻炼干预设计提供了见解，旨在促进MS患者参与并持续进行锻炼。
