[慢性病/残疾儿童兄弟姐妹的风险因素]
[Risk factors in siblings of chronically ill/disabled children].
作者信息
Sievert Charlotte, Kulisch Leonard Konstantin, Engelhardt-Lohrke Christa, Kowalewski Kerstin, Jagla-Franke Melanie
机构信息
Hochschule Magdeburg-Stendal, Stendal, Deutschland.
Elternhilfe für krebskranke Kinder Leipzig e. V., Philipp-Rosenthal-Str. 21, 04103 Leipzig, Deutschland.
出版信息
Pravent Gesundh. 2023 Jun 2:1-6. doi: 10.1007/s11553-023-01044-5.
BACKGROUND
Siblings of children with chronic health conditions or disabilities have an increased risk for developmental difficulties. Therefore, preventive programs aimed to facilitate resiliency were developed.
OBJECTIVES
This study intends to investigate the condition-related psychological, social, and economic burdens of families taking part in prevention programs. Moreover, whether other potential sociodemographic risk factors exist among participating siblings was also investigated.
METHODS
A total of 79 families of participating children were included. The Impact on Family Scale and a demographic questionnaire were used. The cumulative risk approach was used to analyze sociodemographic risk.
RESULTS
Participating families reported being more burdened by the health condition/disability compared to norm data. Additional sociodemographic risk factors were found for 56% of the children.
CONCLUSIONS
Preventive programs reach burdened families. Sibling support should be developed further.
背景
患有慢性健康问题或残疾儿童的兄弟姐妹出现发育困难的风险增加。因此，旨在促进适应力的预防项目得以开展。
目的
本研究旨在调查参与预防项目的家庭与疾病相关的心理、社会和经济负担。此外，还调查了参与项目的兄弟姐妹中是否存在其他潜在的社会人口学风险因素。
方法
共纳入了79个参与项目儿童的家庭。使用了家庭影响量表和一份人口统计学问卷。采用累积风险方法分析社会人口学风险。
结果
与标准数据相比，参与项目的家庭报告称健康状况/残疾带来的负担更重。56%的儿童存在其他社会人口学风险因素。
结论
预防项目覆盖了负担较重的家庭。应进一步发展对兄弟姐妹的支持。
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