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兄弟姐妹被诊断患有癌症的儿童如何体验和应对这种疾病

[How children who's siblings are diagnosed with cancer experience and regulate the disease].

作者信息

Juen Florian, Guggemos Andreas, Engelmann Lina, Diesselhorst Viola, Di Gallo Alain

机构信息

Institut für Psychologie, Universität Innsbruck.

出版信息

Prax Kinderpsychol Kinderpsychiatr. 2013;62(7):491-504.

Abstract

The aim of this study is to investigate behaviour problems and emotional regulation of children who's siblings are diagnosed with cancer. Participants were assessed with the Strengths and Difficulties Questionnaire (SDQ) and the MacArthur Story Stem Battery (MSSB). Both instruments were administered twice (shortly after diagnosis and at the end of treatment). Brothers and sisters of 14 children suffering from cancer were compared with 18 siblings of healthy individuals. In the SDQ no differences between the two groups were found. At time 1 the MSSB showed significant differences in number and quality of displayed contents, representation of parents and the way of performing the narrative. At time 2 narratives changed particularly in the treatment group, but some differences still remained. Overall siblings of children suffering from cancer showed more intrapsychic reaction to the disease than became obvious in their behaviour. This fosters the conclusion that there may be a need for specific support for siblings of children with cancer in order to prevent them from psychic disorders and pathological mourning reactions.

摘要

本研究的目的是调查其兄弟姐妹被诊断患有癌症的儿童的行为问题和情绪调节能力。参与者通过优势与困难问卷(SDQ)和麦克阿瑟故事脚本测验(MSSB)进行评估。这两种工具均进行了两次施测(诊断后不久和治疗结束时)。将14名患癌儿童的兄弟姐妹与18名健康个体的兄弟姐妹进行了比较。在SDQ中,未发现两组之间存在差异。在时间1时,MSSB在展示内容的数量和质量、父母的表征以及叙事方式上显示出显著差异。在时间2时,叙事尤其在治疗组中发生了变化,但仍存在一些差异。总体而言,患癌儿童的兄弟姐妹对该疾病表现出更多的内心反应,而不是在其行为中明显表现出来。这促使得出结论,可能需要为患癌儿童的兄弟姐妹提供特定支持,以防止他们出现心理障碍和病理性哀悼反应。

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