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[针对患有疾病或残疾儿童的兄弟姐妹的一项手册化团体项目评估]

[Evaluation of a Manualized Group Program for Siblings of Children with Diseases or Disabilities].

作者信息

Engelhardt-Lohrke Christa, Schepper Florian, Herrmann Jessy, Kowalewski Kerstin, Spilger Thore, Weiß Cornelius, Martini Julia

机构信息

Elternhilfe für krebskranke Kinder Leipzig e.V Philipp-Rosenthal-Str. 21 04103 Leipzig Deutschland Elternhilfe für krebskranke Kinder Leipzig e.V.

Selbstständige Abteilung für Pädiatrische Onkologie, Hämatologie und Hämostaseologie Universitätsklinikum Leipzig Deutschland Abteilung für Pädiatrische Onkologie, Hämatologie und Hämostaseologie.

出版信息

Prax Kinderpsychol Kinderpsychiatr. 2020 May;69(3):203-217. doi: 10.13109/prkk.2020.69.3.203.

Abstract

This study evaluates a manualized group program for siblings of children with life-threatening/life-limiting diseases or disabilities. The program aims to activate resources and to reduce emotional and behavioral problems, using cognitive-behavioral methods and experience-based interventions. In this multi-center study, 13 GeschwisterTREFFs were conducted by 11 study sites in Germany. Prior to and after the intervention 97 siblings aged 7 to 14 years and their parents were examined with standardized questionnaires. At baseline, the siblings of children with diseases or disabilities showed significant more emotional and behavioral problems compared to the respective norm samples. After the intervention, the siblings reported declined problem behavior scores that were mostly in the range of the particular norm values. Furthermore, the children indicated a significant improvement of self-esteem, self-efficacy, school competences and relations to their siblings. However, parents reported more problem behavior and less health-related quality of life of their children at both assessments. The present multi-center study showed the interventions' feasibility in different settings and confirmed expected improvements of target variables during the intervention period. Randomized-controlled trails are warranted to verify our results.

摘要

本研究评估了一项针对患有危及生命/限制生命疾病或残疾儿童的兄弟姐妹的手册化团体项目。该项目旨在利用认知行为方法和基于经验的干预措施来激活资源,并减少情绪和行为问题。在这项多中心研究中,德国的11个研究地点开展了13次“兄弟姐妹见面会”。在干预前后,使用标准化问卷对97名7至14岁的兄弟姐妹及其父母进行了检查。在基线时,患有疾病或残疾儿童的兄弟姐妹与相应的常模样本相比,表现出明显更多的情绪和行为问题。干预后,这些兄弟姐妹报告的问题行为得分有所下降,大多处于特定常模值范围内。此外,孩子们表示自尊、自我效能感、学校能力以及与兄弟姐妹的关系有了显著改善。然而,在两次评估中,父母都报告孩子有更多的问题行为以及与健康相关的生活质量较低。目前的多中心研究表明了干预措施在不同环境中的可行性,并证实了干预期间目标变量的预期改善。有必要进行随机对照试验来验证我们的结果。

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