Sankar Keerthana, Johnson Anne, McRae Kathryn, Rampolla Reinaldo, Kolaitis Nicholas A
Division of Pulmonary and Critical Care, Cedars-Sinai Medical Center, Los Angeles, California.
Lung Transplant Program, University of California, San Francisco, California.
JHLT Open. 2025 Mar 4;8:100239. doi: 10.1016/j.jhlto.2025.100239. eCollection 2025 May.
Caregivers play a pivotal role in supporting patients undergoing lung transplant and often experience significant psychological, physical, and financial burdens. The current literature suggests that caregivers face heightened depression and anxiety in both the pre- and post-transplant periods. Caregivers of lung transplant patients may face unique challenges compared to other caregiver populations due to fears regarding pre- and post-transplant survival, lifestyle changes associated with post-transplant complications, and financial burden due to job loss and relocation. Caregiver well-being is linked to patient outcomes, with increased burden associated with higher post-transplant mortality. This review summarizes the symptoms associated with caregiver burden, assessment tools to evaluate caregiver strain, patient outcomes and social determinants of health as it relates to caregiver-patient relationships, and interventions to mitigate caregiver burden in the lung transplant population.
照顾者在支持接受肺移植的患者方面发挥着关键作用，并且经常承受巨大的心理、身体和经济负担。当前文献表明，照顾者在移植前和移植后阶段都面临着更严重的抑郁和焦虑。与其他照顾者群体相比，肺移植患者的照顾者可能面临独特的挑战，这是由于对移植前后生存的恐惧、与移植后并发症相关的生活方式改变，以及因失业和搬迁造成的经济负担。照顾者的健康状况与患者的预后相关，负担加重与移植后较高的死亡率相关。本综述总结了与照顾者负担相关的症状、评估照顾者压力的工具、患者预后以及与照顾者 - 患者关系相关的健康社会决定因素，以及减轻肺移植人群中照顾者负担的干预措施。
