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没有针对那个的应用程序!关于吸引不同社区以促进公平医疗的观点。

There's no app for that! perspectives on engaging diverse communities to promote equitable care.

作者信息

Lane Jennifer, Barber Brittany, Pennell Courtney, Lane Kris, White Megan, Doucette Noah

机构信息

Faculty of Health, School of Nursing, Dalhousie University, Halifax, NS, Canada.

IWK Health Centre, Halifax, NS, Canada.

出版信息

Digit Health. 2025 Jun 4;11:20552076251348095. doi: 10.1177/20552076251348095. eCollection 2025 Jan-Dec.

Abstract

Engaging patients and communities in the development and evaluation of mHealth applications can optimize useability, user adherence, health outcomes, and transparency of how personal health data is used, stored, and transferred to commercial partners. This commentary is informed by an event that aimed to invite knowledge sharers/users from equity-denied groups to provide feedback about a preliminary set of questions meant to collect socio-structural health determinants information and their potential use within mHealth applications. Three key lessons were learned: (1) challenges of reciprocity, (2) concerns of responsible data stewardship, and (3) processes of building trust for meaningful community engagement. Responding to historical and ongoing injustices is critical for building trust and supporting successful uptake of health technologies with communities. Soliciting feedback from community once decisions about implementation have been made may come across as performative or disingenuous, further undermining possibilities to establish and maintain productive relationships that are mutually beneficial to all parties involved. Without concerted effort to improve access to healthcare resources, progress made with mHealth applications may come at the expense of people and communities already underserved within existing healthcare systems.

摘要

让患者和社区参与移动健康应用程序的开发和评估,可以优化其可用性、用户依从性、健康结果,以及个人健康数据的使用、存储和传输给商业合作伙伴的透明度。本评论基于一项活动,该活动旨在邀请被剥夺公平权利群体的知识分享者/用户,就一组初步问题提供反馈,这些问题旨在收集社会结构健康决定因素信息及其在移动健康应用程序中的潜在用途。我们学到了三个关键经验教训:(1)互惠的挑战,(2)对负责任的数据管理的担忧,以及(3)为有意义的社区参与建立信任的过程。应对历史上和持续存在的不公正现象对于建立信任和支持社区成功采用健康技术至关重要。一旦做出实施决定后才征求社区的反馈,可能会被视为作秀或不真诚,进一步破坏建立和维持对所有相关方都互利的富有成效关系的可能性。如果不共同努力改善医疗资源的获取,移动健康应用程序取得的进展可能会以现有医疗系统中已经服务不足的人群和社区为代价。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a3fa/12144385/4ab2679982f3/10.1177_20552076251348095-fig1.jpg

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