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智力和发育障碍儿童的拉丁裔家庭中的健康社会决定因素、母亲生活质量和家庭功能

Social Determinants of Health, Maternal Quality of Life, and Family Functioning Among Latinx Families of Children with Intellectual and Developmental Disabilities.

作者信息

Zeng Weiwen, Suarez-Balcazar Yolanda, Errisuriz Vanessa L, Mirza Mansha, Vanegas Sandra B, Parra-Medina Deborah, Magaña Sandy

机构信息

School of Social Work, University of Texas at Arlington, 501 W Mitchell St, Arlington, TX, 76010, USA.

Steve Hicks School of Social Work, University of Texas at Austin, Austin, TX, USA.

出版信息

J Autism Dev Disord. 2025 Jun 11. doi: 10.1007/s10803-025-06919-4.

DOI:10.1007/s10803-025-06919-4
PMID:40498256
Abstract

This study aims to understand the relationships of social determinants of health (SDOH) and sociocultural factors with maternal quality of life and family functioning among Latinx families of children with intellectual and developmental disabilities (IDD). We recruited 105 Latinx families of children with IDD across Texas and Illinois. We used conditional process models to examine the associations between demographic variables, SDOH, sociocultural factors (social support and family cohesion), and outcomes including maternal quality of life (QoL) and family functioning. We also tested whether sociocultural factors moderated the relationships between selected SDOH and the study outcomes. We found that not being a homeowner, experiencing food insecurity, and having greater levels of perceived discrimination were associated with lower maternal QoL. We also found that food insecurity and greater levels of perceived discrimination were associated with lower family functioning among Latinx families of children with IDD. Social support and family cohesion were positive correlates of the outcomes; however, they did not show significant moderation effects. On the contrary, we found that perceived discrimination may dampen the impact of social support on maternal QoL. This study highlights the impact of SDOH on the wellbeing of Latinx families of children with IDD. Policies and programs that promote homeownership, reduce food insecurity, and combat discrimination may benefit the wellbeing of Latinx families with children with IDD.

摘要

本研究旨在了解健康的社会决定因素(SDOH)和社会文化因素与患有智力和发育障碍(IDD)儿童的拉丁裔家庭中母亲的生活质量及家庭功能之间的关系。我们招募了来自得克萨斯州和伊利诺伊州的105个患有IDD儿童的拉丁裔家庭。我们使用条件过程模型来检验人口统计学变量、SDOH、社会文化因素(社会支持和家庭凝聚力)与包括母亲生活质量(QoL)和家庭功能在内的结果之间的关联。我们还测试了社会文化因素是否调节了选定的SDOH与研究结果之间的关系。我们发现,非房主身份、经历粮食不安全以及感知到更高程度的歧视与母亲较低的生活质量相关。我们还发现,粮食不安全和更高程度的感知歧视与患有IDD儿童的拉丁裔家庭中较低的家庭功能相关。社会支持和家庭凝聚力与这些结果呈正相关;然而,它们并未显示出显著的调节作用。相反,我们发现感知到的歧视可能会削弱社会支持对母亲生活质量的影响。本研究强调了SDOH对患有IDD儿童的拉丁裔家庭福祉的影响。促进住房所有权、减少粮食不安全和消除歧视的政策和项目可能有益于患有IDD儿童的拉丁裔家庭的福祉。

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本文引用的文献

1
Bias, Prejudice, Discrimination, Racism, and Social Determinants: The Impact on the Health and Well-Being of Latino Children and Youth.偏见、歧视、种族主义和社会决定因素:对拉丁裔儿童和青年健康和福祉的影响。
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拉丁裔智力和发育障碍儿童及青少年的养育策略与BMI百分位数之间的关联。
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6
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Front Public Health. 2022 Jul 15;10:877328. doi: 10.3389/fpubh.2022.877328. eCollection 2022.
7
Social Support and Parenting Stress in Hispanic Parents of Children with Autism Spectrum Disorder.孤独症谱系障碍儿童的西班牙裔父母的社会支持和育儿压力。
Issues Ment Health Nurs. 2022 Nov;43(11):1030-1040. doi: 10.1080/01612840.2022.2100949. Epub 2022 Jul 18.
8
Daily Discrimination and Affect in Latinx Adolescent-Parent Dyads Residing in Northeast United States.美国东北部拉丁裔青少年-家长二联体的日常歧视和情感。
J Res Adolesc. 2022 Jun;32(2):611-624. doi: 10.1111/jora.12750. Epub 2022 Apr 10.
9
Health Disparities and Their Effects on Children and Their Caregivers During the Coronavirus Disease 2019 Pandemic.2019 冠状病毒病大流行期间儿童及其照护者的健康差异及其影响。
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Impact of COVID-19 on the Mental Health and Well-Being of Latinx Caregivers of Children with Intellectual and Developmental Disabilities.COVID-19 对拉丁裔儿童智力和发育障碍照顾者心理健康和福祉的影响。
Int J Environ Res Public Health. 2021 Jul 28;18(15):7971. doi: 10.3390/ijerph18157971.