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改善痴呆症患者照料者生活质量的数字健康素养与身体活动计划(CAREFIT):研究方案

Digital Health Literacy and Physical Activity Programme for Improvement of Quality of Life in Caregivers of People with Dementia (CAREFIT): Study Protocol.

作者信息

Ferrero-Sereno Patricia, Palomo-López Patricia, Mendoza-Muñoz María, Luna-Castaño Patricia, Caballero-De la Calle Raquel, Muñoz-Bermejo Laura

机构信息

Social Impact and Innovation in Health (INHealth), University Centre of Merida, University of Extremadura, 06800 Mérida, Spain.

Research Group Nurse-In, University Alfonso X el Sabio, Villanueva de la Cañada, Comunidad de, 28691 Madrid, Spain.

出版信息

Healthcare (Basel). 2025 May 22;13(11):1219. doi: 10.3390/healthcare13111219.

DOI:10.3390/healthcare13111219
PMID:40508835
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12154072/
Abstract

: Dementia involves progressive cognitive and functional deterioration that leads to dependence and overload on family caregivers. This overload has a negative impact on the physical, mental, emotional, and occupational health of caregivers, leading to occupational imbalance and problems arising from an inadequate distribution of time devoted to caregiving. This project aims to evaluate the effects of the technology-based CAREFIT programme, structured around physical activity interventions, education, and psychoemotional and social support, on the health-related quality of life and emotional well-being of informal caregivers. : The experimental group will develop the intervention programme, which will last 8 weeks and combine educational activities, physical activities, and psychoemotional and social support. Before beginning the intervention, the entire experimental group will receive a training session and educational materials on how to access and use the platform. The CAREFIT platform will consist of two educational sessions and two weekly physical sessions, combined with psychoemotional and social support activities that participants must complete. Initial, final, and follow-up evaluations will be conducted. The HRQoL and psychoemotional health (stress, anxiety, depression, and perceived social support and burden) of caregivers of people with dementia will be the main outcome measures. The effects of the intervention on the study variables will be assessed using a repeated-measures analysis of variance (ANOVA). : The proposed protocol for the CAREFIT programme represents an innovative and multidisciplinary initiative that leverages a digital platform to promote the well-being of informal caregivers of people with dementia. This approach combines health literacy and strengthened psychoemotional and social support. Through this integration, the goal is to reduce the levels of burden, stress, anxiety, and depression among primary caregivers, while strengthening their self-care capabilities and social support networks.

摘要

痴呆症会导致认知和功能逐渐衰退,使家庭照料者产生依赖并负担过重。这种负担过重会对照料者的身体、心理、情感和职业健康产生负面影响,导致职业失衡以及因照料时间分配不足而产生的问题。本项目旨在评估基于技术的CAREFIT项目对非正式照料者健康相关生活质量和情绪健康的影响,该项目围绕体育活动干预、教育以及心理情感和社会支持展开。

实验组将开展为期8周的干预项目,该项目将教育活动、体育活动以及心理情感和社会支持相结合。在开始干预之前,整个实验组将接受一次关于如何访问和使用该平台的培训课程及教育材料。CAREFIT平台将包括两次教育课程和每周两次的体育课程,同时还有参与者必须完成的心理情感和社会支持活动。将进行初始、最终和随访评估。痴呆症患者照料者的健康相关生活质量和心理情感健康(压力、焦虑、抑郁以及感知到的社会支持和负担)将作为主要的评估指标。将使用重复测量方差分析(ANOVA)来评估干预对研究变量的影响。

拟议的CAREFIT项目方案是一项创新的多学科举措,它利用数字平台来促进痴呆症患者非正式照料者的福祉。这种方法将健康素养与强化的心理情感和社会支持相结合。通过这种整合,目标是减轻主要照料者的负担、压力、焦虑和抑郁水平,同时增强他们的自我照料能力和社会支持网络。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4a24/12154072/ebdfe37839a6/healthcare-13-01219-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4a24/12154072/ebdfe37839a6/healthcare-13-01219-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4a24/12154072/ebdfe37839a6/healthcare-13-01219-g001.jpg

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本文引用的文献

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Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Randomized Controlled Trial.基于互联网的支持性干预措施对痴呆患者家属的影响:一项随机对照试验。
JMIR Aging. 2024 Oct 4;7:e50847. doi: 10.2196/50847.
2
Virtual Reality Combined With Psychoeducation to Improve Emotional Well-Being in Informal Caregivers of Alzheimer's Disease Patients: Rationale and Study Design of a Randomized Controlled Trial.虚拟现实联合心理教育对改善阿尔茨海默病患者非正式照护者情绪健康的效果:一项随机对照试验的理论基础与研究设计。
Int J Geriatr Psychiatry. 2024 Sep;39(9):e6145. doi: 10.1002/gps.6145.
3
Physical activity and its relationship to burden and health concerns in family caregivers of people with dementia.
体力活动及其与痴呆患者家庭照顾者负担和健康问题的关系。
Psychogeriatrics. 2024 Mar;24(2):165-173. doi: 10.1111/psyg.13053. Epub 2023 Nov 30.
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2023 Alzheimer's disease facts and figures.2023 年阿尔茨海默病事实和数据。
Alzheimers Dement. 2023 Apr;19(4):1598-1695. doi: 10.1002/alz.13016. Epub 2023 Mar 14.
5
Is health literacy of family carers associated with carer burden, quality of life, and time spent on informal care for older persons living with dementia?家庭护理者的健康素养是否与照顾者负担、生活质量以及为痴呆症老年患者提供非正式护理所花费的时间有关?
PLoS One. 2020 Nov 20;15(11):e0241982. doi: 10.1371/journal.pone.0241982. eCollection 2020.
6
Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Systematic Review and Meta-Analysis.基于互联网的支持性干预措施对痴呆患者家属的影响:系统评价和荟萃分析。
J Med Internet Res. 2020 Sep 9;22(9):e19468. doi: 10.2196/19468.
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What is the meaning of health literacy? A systematic review and qualitative synthesis.健康素养的含义是什么?系统评价和定性综合。
Fam Med Community Health. 2020 May;8(2). doi: 10.1136/fmch-2020-000351.
8
Sex and gender differences in caregiving burden experienced by family caregivers of persons with dementia: A systematic review.痴呆患者家属照护负担的性别差异:系统综述。
PLoS One. 2020 Apr 20;15(4):e0231848. doi: 10.1371/journal.pone.0231848. eCollection 2020.
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Family caregiving in dementia and its impact on quality of life and economic burden in Japan-web based survey.日本痴呆症家庭护理及其对生活质量和经济负担的影响——基于网络的调查
J Mark Access Health Policy. 2020 Feb 11;8(1):1720068. doi: 10.1080/20016689.2020.1720068. eCollection 2020.
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Barriers, motivators and facilitators of physical activity in people with dementia and their family carers in England: dyadic interviews.英格兰痴呆症患者及其家庭照顾者进行身体活动的障碍、动机和促进因素:对偶访谈。
Aging Ment Health. 2021 Jun;25(6):1115-1124. doi: 10.1080/13607863.2020.1727852. Epub 2020 Feb 18.