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医疗决策中数字健康数据使用的机会错失:肯尼亚霍马湾县的横断面数字健康状况评估

Missed opportunities for digital health data use in healthcare decision-making: A cross-sectional digital health landscape assessment in Homa Bay county, Kenya.

作者信息

Chepkirui Mercy, Dellicour Stephanie, Musuva Rosemary, Odero Isdorah, Omondi Benson, Omondi Benard, Onyango Eric, Barsosio Hellen, Otiso Lilian, Okomo Gordon, Waweru Maina, Lesosky Maia, Tancred Tara, Alhassan Yussif, Kariuki Simon, terKuile Feiko, Taegtmeyer Miriam

机构信息

Malaria Branch, Kenya Medical Research Institute, Center for Global Health Research, Kisumu, Kenya.

Department of Clinical Sciences, Liverpool School of Tropical Medicine, Liverpool, United Kingdom.

出版信息

PLOS Digit Health. 2025 Jun 13;4(6):e0000870. doi: 10.1371/journal.pdig.0000870. eCollection 2025 Jun.

Abstract

The proliferation of digital health systems in Sub-Saharan Africa is driven by the need to improve healthcare access and decision-making. This digitisation has been marked by fragmented implementation, the absence of universal patient identifiers, inadequate system linkages, limited data sharing, and reliance on donor-driven funding. Consequently, the increase in digital health data generation is not matched by similar growth in data use for decision-making, patient-centric care, and research. This study aimed to describe the digital health landscape in Homa Bay County and highlight the strengths and limitations of using digital health data for healthcare decision-making. We used mixed methods. A cross-sectional survey was conducted between June 2022 and October 2023 in 112 healthcare facilities to identify available digital health systems and assess their adoption and utilisation. Thirty-three in-depth interviews were conducted with relevant digital health stakeholders to seek stakeholder perspectives. Our study identified ten different digital health systems, nine of which were in active use. 91% (102/112) of surveyed health facilities had Kenya Electronic Medical Record system deployed for HIV patient management. Eight additional digital systems were available alongside this HIV system, but deployment was fragmented. Challenges to digital systems usage included lack of interoperability, unreliable internet, system downtime, power outages, staff turnover, patient workload, and lack of universal patient identifiers. The study identified multiple systems in use, with the HIV care management system being the most prevalent. The primary challenge hindering effective digital data utilisation is network instability, alongside issues such as the lack of interoperability, disjointed data quality assurance processes, and non-standardised patient identifiers. Recommendations include establishing a routine care data governance framework, implementing universal unique patient identifiers, harmonised data quality practices, advocating for universally compatible digital systems, promoting interoperability, and evaluating the suitability of the existing digital health data for surveillance research and decision-making.

摘要

撒哈拉以南非洲数字健康系统的扩散是由改善医疗服务可及性和决策的需求驱动的。这种数字化的特点是实施碎片化、缺乏通用患者标识符、系统链接不足、数据共享有限以及依赖捐助者驱动的资金。因此,数字健康数据生成的增加并未伴随着用于决策、以患者为中心的护理和研究的数据使用的类似增长。本研究旨在描述霍马湾县的数字健康状况,并强调使用数字健康数据进行医疗决策的优势和局限性。我们采用了混合方法。2022年6月至2023年10月期间,在112个医疗机构进行了横断面调查,以确定可用的数字健康系统,并评估其采用和利用情况。与相关数字健康利益相关者进行了33次深入访谈,以寻求利益相关者的观点。我们的研究确定了10种不同的数字健康系统,其中9种正在积极使用。91%(102/112)的受访医疗机构部署了肯尼亚电子病历系统用于艾滋病毒患者管理。除了这个艾滋病毒系统外,还有另外8个数字系统可用,但部署是碎片化的。数字系统使用的挑战包括缺乏互操作性、互联网不可靠、系统停机、停电、人员流动、患者工作量以及缺乏通用患者标识符。该研究确定了多个正在使用的系统,其中艾滋病毒护理管理系统最为普遍。阻碍有效利用数字数据的主要挑战是网络不稳定,以及缺乏互操作性、脱节的数据质量保证流程和未标准化的患者标识符等问题。建议包括建立常规护理数据治理框架、实施通用唯一患者标识符、统一数据质量做法、倡导普遍兼容的数字系统、促进互操作性以及评估现有数字健康数据用于监测研究和决策的适用性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8706/12165431/e42d4ad3de2a/pdig.0000870.g001.jpg

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