Rodts Megan, Gal Dana B, Hills Brittney K, Marcuccio Elisa, Pater Colleen M, Hanke Samuel
Cincinnati Children's Hospital Medical Center, The Heart Institute, Cincinnati, OH.
Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH.
J Pediatr Clin Pract. 2025 May 14;16:200147. doi: 10.1016/j.jpedcp.2025.200147. eCollection 2025 Jun.
To identify the utilization of shared medical notes, referred to as "open notes," and the experience of caregivers and cardiology providers during inpatient hospitalization for congenital heart disease.
Single-center, cross-sectional, survey-based study utilizing convenience sampling of patient caregivers on a pediatric acute care cardiology unit and corresponding cardiology providers. Surveys assessed demographic information, health literacy of caregivers, and experiences during inpatient hospitalization that relate to open note use. Descriptive statistics were performed.
Forty-five caregivers (47% of eligible) and 21 cardiology providers (100% of eligible) were enrolled. There were no demographic differences between caregivers, or their children, who were open notes vs nonopen notes users ( > .05). Most caregivers were aware that the notes were available (87%), yet fewer enrolled in the program to read them (71%). Most caregivers had positive experiences with the notes (85%), while cardiology providers' opinions were overall neutral or negative (65%). Cardiology providers' suggestions for improvement of open notes were frequently infeasible based on regulations required by the 21st Century Cures Act.
Open notes in inpatient subspecialty pediatrics yields a novel opportunity for caregivers to engage positively and actively with the care team. Cardiology providers may value how positively caregivers view open notes as a method of receiving medical information and interacting with the care team. Cardiology providers may also benefit from further education on the new legislation in the 21st Century Cures Act.
确定共享医疗记录（即“开放病历”）的使用情况，以及先天性心脏病住院期间护理人员和心脏病学提供者的体验。
单中心、横断面、基于调查的研究，对儿科急性护理心脏病科的患者护理人员和相应的心脏病学提供者采用便利抽样。调查评估了人口统计学信息、护理人员的健康素养以及住院期间与开放病历使用相关的体验。进行了描述性统计。
招募了45名护理人员（占符合条件者的47%）和21名心脏病学提供者（占符合条件者的100%）。开放病历使用者与非使用者的护理人员及其子女在人口统计学上没有差异（P>0.05）。大多数护理人员知道有这些病历（87%），但登记阅读的较少（71%）。大多数护理人员对病历有积极体验（85%），而心脏病学提供者的意见总体上是中性或负面的（65%）。根据《21世纪治愈法案》的规定，心脏病学提供者对改进开放病历的建议往往不可行。
住院专科儿科的开放病历为护理人员提供了一个与护理团队积极互动的新机会。心脏病学提供者可能重视护理人员如何积极看待开放病历作为获取医疗信息和与护理团队互动的一种方式。心脏病学提供者也可能从关于《21世纪治愈法案》新立法的进一步教育中受益。
