Bear Don't Walk Oliver, Haldar Shefali, Wei Duo Helen, Huang Hu, Rivera Rebecca L, Fan Jungwei W, Keloth Vipina K, Leung Tiffany I, Desai Pooja, Korngiebel Diane M, Grossman Liu Lisa, Pichon Adrienne, Subbian Vignesh, Solomonides Anthony Tony, Wiley Laura K, Ogunyemi Omolola, Jackson Gretchen P, Dankwa-Mullan Irene, Dirks Lisa G, Everhart Avery Rose, Parker Andrea G, Iott Bradley, Kronk Clair, Foraker Randi, Martin Krista, Anand Tara, Volpe Salvatore G, Yung Nathan, Rizvi Rubina, Lucero Robert, Bright Tiffani J
Department of Biomedical Informatics and Medical Education, University of Washington, Seattle, WA 98109, United States.
Merck & Co., Inc., Boston, MA 02115, United States.
J Am Med Inform Assoc. 2025 Aug 1;32(8):1380-1387. doi: 10.1093/jamia/ocaf096.
In 2023, AMIA's Inclusive Language and Context Style Guidelines (the "Guidelines") were approved by the Board of Directors and made a publicly available resource. This work began in 2021 through AMIA's DEI Task Force and subsequent DEI Committee; many members provided input, feedback, and time to create the Guidelines. In this paper, the authors provide a transparent account of the origin, development, contents, and dissemination of the Guidelines and share plans for their future development and use.
Our approach to drafting, refining, and distributing the Guidelines included consulting existing language guides, AMIA member reviews, external expert reviews, webinars, and workshops. Through an iterative approach to drafting and refining the Guidelines, the authors consulted relevant language guidelines and many experts throughout and beyond the AMIA community.
The Inclusive Language Context Guidelines were formally approved by the AMIA Board of Directors on February 15, 2023. The Guidelines included four principles to be considered in scientific communications: Plurality, Precision, Transparency, and Destigmatization.
A moment of vulnerability where an AMIA member raised concerns about the use of harmful language during a presentation resulted in the creation of a principled approach to support inclusive language within biomedical and health informatics communications. We envision that the Guidelines will support health equity by challenging dominant public narratives around health, fostering stronger interdisciplinary collaboration and critical thinking about the impact of language, and creating a more welcoming environment for the broader AMIA community. This work could not have been completed without the support of many AMIA members and other researchers in biomedical and health informatics. The Guidelines are a living document that will continue to be updated with input and feedback from the AMIA community into the future.
2023年，美国医学信息学会（AMIA）的包容性语言与语境风格指南（以下简称“指南”）获得董事会批准，并成为一项公开可用的资源。这项工作始于2021年，通过AMIA的多元化、公平与包容（DEI）特别工作组及后续的DEI委员会开展；许多成员为创建该指南提供了意见、反馈并投入了时间。在本文中，作者对指南的起源、发展、内容和传播进行了透明的阐述，并分享了其未来发展和使用计划。
我们起草、完善和分发指南的方法包括参考现有语言指南、AMIA成员评审、外部专家评审、网络研讨会和工作坊。通过反复起草和完善指南，作者咨询了相关语言指南以及AMIA社区内外的众多专家。
包容性语言语境指南于2023年2月15日正式获得AMIA董事会批准。该指南包括在科学交流中应考虑的四项原则：多元性、精确性、透明度和去污名化。
一位AMIA成员在一次演讲中对使用有害语言表示担忧，这一脆弱时刻促成了一种有原则的方法，以支持生物医学和健康信息学交流中的包容性语言。我们设想，该指南将通过挑战围绕健康的主流公众叙事、促进更强有力的跨学科合作以及对语言影响的批判性思考，并为更广泛的AMIA社区创造一个更友好的环境，来支持健康公平。没有众多AMIA成员以及生物医学和健康信息学领域其他研究人员的支持，这项工作是不可能完成的。该指南是一份动态文件，未来将继续根据AMIA社区的意见和反馈进行更新。
