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播客作为癌症青年患者与放射治疗研究人员之间分享和传播经验及专业知识的平台。

Podcasts as a platform for sharing and disseminating experiences and expertise between young adults with cancer and radiotherapy researchers.

作者信息

Whittaker Lisa, Espinosa-Cabrera Elena, Haar Helen, Hall Elly, Lambert Sophie, Tristram Jesse, Vladykova Michaela, Drake Rebecca, Eminowicz Gemma, Lewandowska Patrycja, Veiga Catarina, Webster Amanda, McNamara Joanna, Julka-Anderson Naman, Owen David, Taylor-Gee Alice, Terry Samantha Y A, Dean Jamie A

机构信息

Cancer Research UK RadNet City of London, London, UK.

School of Biomedical Engineering and Imaging Sciences, King's College London, London, UK.

出版信息

Res Involv Engagem. 2025 Jun 17;11(1):64. doi: 10.1186/s40900-025-00718-y.

Abstract

We set out to co-create a collaborative project that would raise awareness of radiotherapy, explore young adults' experiences of cancer treatment, and share radiotherapy research with audiences beyond academia. To do this, we partnered radiotherapy researchers with young adults who had undergone radiotherapy, co-creating a series of episodes for an established oncology podcast. These conversations offered space for participants to share their stories and personal insights, both as patients and as researchers. Six young adults and six researchers took part, supported by preparatory discussions to help shape meaningful conversations. Each podcast episode featured unique patient experiences alongside different areas of radiotherapy research. An independent evaluation, based on semi-structured interviews with participants and hosts, highlighted the importance of relational connection, mutual respect, and the value of having a dedicated project coordinator. The episodes were downloaded over 3000 times in 120 countries. Participants described feeling heard and appreciated, and several researchers reflected on the renewed motivation and perspective gained through the project. This collaboration suggests how podcasting has the potential to serve as an accessible and emotionally resonant tool for engagement, enabling researchers and patients to connect in new ways and share knowledge with a broader public. Future projects of this kind may benefit from a similar co-creative and well-supported approach.

摘要

我们着手共同创建一个合作项目,该项目旨在提高对放射治疗的认识,探索年轻人的癌症治疗经历,并与学术界以外的受众分享放射治疗研究成果。为此,我们将放射治疗研究人员与接受过放射治疗的年轻人结成伙伴关系,为一个知名的肿瘤学播客共同创作了一系列节目。这些对话为参与者提供了分享他们作为患者和研究人员的故事及个人见解的空间。六名年轻人和六名研究人员参与其中,并通过前期讨论提供支持,以帮助构建有意义的对话。每个播客节目都呈现了独特的患者经历以及放射治疗研究的不同领域。一项基于对参与者和主持人进行半结构化访谈的独立评估强调了关系连接、相互尊重以及拥有一名专职项目协调员的价值。这些节目在120个国家被下载了3000多次。参与者表示感觉自己被倾听和欣赏,几位研究人员也反思了通过该项目获得的新动力和新视角。这种合作表明播客有潜力成为一种易于接触且能引发情感共鸣的参与工具,使研究人员和患者能够以新的方式建立联系,并与更广泛的公众分享知识。未来此类项目可能会从类似的共同创作且得到充分支持的方法中受益。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0efa/12172223/2f6c8c88d81b/40900_2025_718_Fig1_HTML.jpg

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