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本文引用的文献

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Common Data Elements Regarding Social Determinants of Health in Pediatric Epilepsy Research: A Concept Mapping Study.儿科癫痫研究中关于健康社会决定因素的通用数据元素:一项概念映射研究。
Pediatr Neurol. 2025 Apr;165:87-95. doi: 10.1016/j.pediatrneurol.2025.01.025. Epub 2025 Feb 6.
2
Development of a Core Critical Care Data Dictionary With Common Data Elements to Characterize Critical Illness and Injuries Using a Modified Delphi Method.使用改良德尔菲法开发具有通用数据元素的核心重症监护数据字典,以描述危重病和损伤情况。
Crit Care Med. 2025 May 1;53(5):e1045-e1054. doi: 10.1097/CCM.0000000000006595. Epub 2025 Feb 21.
3
The NIH HEAL pain common data elements (CDE): a great start but a long way to the finish line.美国国立卫生研究院“健康公平促进与疼痛缓解”疼痛通用数据元素(CDE):一个良好的开端,但距离终点仍有很长的路要走。
Pain Med. 2025 Mar 1;26(3):146-155. doi: 10.1093/pm/pnae110.
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Standardized Data Elements for Patients With Acute Pulmonary Embolism: A Consensus Report From the Pulmonary Embolism Research Collaborative.急性肺栓塞患者的标准化数据元素:肺栓塞研究协作组的共识报告。
Circulation. 2024 Oct;150(14):1140-1150. doi: 10.1161/CIRCULATIONAHA.124.067482. Epub 2024 Sep 12.
5
Application of the Delphi method to the development of common data elements for social drivers of health: A systematic scoping review.德尔菲法在社会健康驱动因素通用数据元素开发中的应用:系统范围界定综述。
Transl Behav Med. 2024 Jun 27;14(7):426-433. doi: 10.1093/tbm/ibae020.
6
Measuring social determinants of health in the All of Us Research Program.测量“全民研究计划”中的健康社会决定因素。
Sci Rep. 2024 Apr 16;14(1):8815. doi: 10.1038/s41598-024-57410-6.
7
Methods Used in the Development of Common Data Models for Health Data: Scoping Review.健康数据通用数据模型开发中使用的方法:范围审查
JMIR Med Inform. 2023 Aug 3;11:e45116. doi: 10.2196/45116.
8
Consensus Recommendations for Standardized Data Elements, Scales, and Time Segmentations in Studies of Human Circadian/Diurnal Biology and Stroke.人类昼夜节律/生物节律和中风研究中标准化数据元素、量表和时间分段的共识建议。
Stroke. 2023 Jul;54(7):1943-1949. doi: 10.1161/STROKEAHA.122.041394. Epub 2023 Jun 5.
9
Consensus Building to Inform Common Evaluation Metrics for the Comprehensive Partnerships to Advance Cancer Health Equity (CPACHE) Program.为癌症健康公平综合伙伴关系计划(CPACHE)制定共同评估指标的共识构建。
J Cancer Educ. 2023 Feb;38(1):231-239. doi: 10.1007/s13187-021-02103-1. Epub 2021 Nov 6.
10
Psychometric and Pragmatic Properties of Social Risk Screening Tools: A Systematic Review.心理计量学和社会风险筛查工具的实用属性:系统评价。
Am J Prev Med. 2019 Dec;57(6 Suppl 1):S13-S24. doi: 10.1016/j.amepre.2019.07.012.

Common Data Element (CDE) Success from Community-Engagement Not Mandates: If You Build It [Data Warehouse], Will They [Participants] Come?

作者信息

Gansky Stuart A, Cheng Alex C, Mendhe Dinesh, Chavez Aryanna, Yeh Hsin-Chieh, Lanier Kathy, Brown William, Hersch Derek E, Huang Elbert S, Enders Felicity T, Phelan Sean M

机构信息

Stuart A. Gansky, Kathy Lanier, and William Brown III are with the Research Coordinating Center to Reduce Disparities in Multiple Chronic Diseases, University of California, San Francisco, CA. Alex C. Cheng is with the Southeast Collaborative for Innovative and Equitable Solutions to Chronic Disease Disparities, Vanderbilt University Medical Center, Nashville, TN. Dinesh Mendhe is with the Rutgers-New York University Center for Asian Health Promotion and Equity, Institute for Health, Health Care Policy and Aging Research, Rutgers University, New Brunswick, NJ. Aryanna Chavez is with the University of California, Los Angeles-University of California, Irvine Center for Eliminating Cardio-Metabolic Disparities in Multi-Ethnic Populations, University of California - Irvine, Irvine, CA. Hsin-Chieh Yeh is with the Mid-Atlantic Center for Cardiometabolic Health Equity, Johns Hopkins University, Baltimore, MD. Derek E. Hersch, Felicity T. Enders, and Sean M. Phelan are with the Center for Chronic Disease Reduction and Equity Promotion Across Minnesota; DEH is at the University of Minnesota, Minneapolis, MN; FTE and SMP are with Mayo Clinic, Rochester, MN. Elbert S. Huang is with the Chicago Chronic Condition Equity Network, University of Chicago, Chicago, IL.

出版信息

Am J Public Health. 2025 Jul;115(S2):S110-S115. doi: 10.2105/AJPH.2025.308114.

DOI:10.2105/AJPH.2025.308114
PMID:40561407
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12199679/
Abstract
摘要