Wright Greta, Woodstoke Natasha S, Dodd Emily, Cheston Richard
School of Social Sciences, University of the West of England, Bristol BS16 1QY, UK.
School of Health and Social Wellbeing, University of the West of England, Bristol BS16 1QY, UK.
Behav Sci (Basel). 2025 Jun 9;15(6):794. doi: 10.3390/bs15060794.
The Living Well with Dementia (LivDem) group intervention aims to support people to adjust following a diagnosis of dementia and is delivered across the UK and abroad. However, LivDem was designed for older people with dementia and may not address the needs of younger adults. This study aimed to identify the perspectives of LivDem facilitators on adapting the LivDem course for younger adults. Data was collected as part of an online facilitator survey and included questions requiring either ordinal or free-text responses. Responses from fifteen facilitators were analysed using descriptive statistics and Reflexive Thematic Analysis. The former indicated that participants believed that LivDem could be beneficial for younger adults and were in favour of it being adapted. Qualitative analysis generated two main themes, the first of which ('The domino effect': Unique Challenges for Younger Adults) had two subthemes: 'Life and opportunities stripped away' and 'Impacting on everyone'. Theme 2, 'Good to be with peers': The Importance of Age-Appropriate Support, also had two subthemes: Groups 'full of old people' and Groups 'specifically for younger people'. These findings reinforce the argument for creating age-appropriate services for people with young-onset dementia and will inform an adapted version of LivDem that provides age-appropriate support.
“痴呆症患者美好生活”（LivDem）团体干预旨在帮助人们在被诊断患有痴呆症后进行调整，该干预在英国及其他国家开展。然而，LivDem是为老年痴呆症患者设计的，可能无法满足年轻人的需求。本研究旨在确定LivDem辅导员对于为年轻人调整LivDem课程的看法。数据作为在线辅导员调查的一部分收集，包括需要有序或自由文本回复的问题。使用描述性统计和反思性主题分析对15名辅导员的回复进行了分析。前者表明参与者认为LivDem可能对年轻人有益，并赞成对其进行调整。定性分析产生了两个主要主题，第一个主题（“多米诺效应”：年轻人面临的独特挑战）有两个子主题：“生活和机会被剥夺”和“影响每个人”。第二个主题“与同龄人在一起很好”：提供适合年龄的支持的重要性，也有两个子主题：“满是老年人的团体”和“专门为年轻人设立的团体”。这些发现强化了为早发性痴呆症患者创建适合年龄服务的论点，并将为提供适合年龄支持的LivDem改编版本提供参考。
