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为视力障碍儿童设计早期评估和干预项目的新跨学科视角。

A new interdisciplinary perspective in the design of early evaluation and intervention programs for children with visual impairment.

作者信息

Mercuriali Elena, Ceccato Chiara, Incagli Francesca, Berto Giulia, Suppiej Agnese, Reffo Maria Eleonora

机构信息

Robert Hollman Foundation, Padova, Italy.

Department of Medical Sciences, University of Ferrara, Ferrara, Italy.

出版信息

Front Pediatr. 2025 Jun 13;13:1596264. doi: 10.3389/fped.2025.1596264. eCollection 2025.

Abstract

Vision plays a crucial role in children's early development. Many studies have demonstrated that disturbance of vision affects a child's developmental trajectory, especially if it occurs early in life. The current report introduces an innovative perspective concerning the evaluation of infants and toddlers with visual impairment within a family-centred, interdisciplinary framework. It emphasizes that a collaborative, multi-professional framework is crucial for understanding and addressing the complex needs of children with visual impairment and their families, particularly during the critical early stages of life. The article presents a six-week evaluation program for children with visual impairment, aged 0-24 months, which has been implemented over the past fifteen years at the Robert Hollman Foundation, Italy. This program integrates professionals from various fields, including paediatric ophthalmology, neurology, psychotherapy, and rehabilitation therapy, to comprehensively assess the child's visual and developmental functioning. Central to this approach is the active involvement of caregivers, who are informed, engaged and empowered in relation to their child's needs. The report argues that an interdisciplinary and family-centred evaluation framework is essential for providing tailored support and facilitating effective early intervention, ultimately improving care outcomes for children with visual impairment.

摘要

视力在儿童早期发育中起着至关重要的作用。许多研究表明,视力障碍会影响儿童的发育轨迹,尤其是在生命早期出现时。本报告引入了一个创新视角,即在以家庭为中心的跨学科框架内对视力受损的婴幼儿进行评估。它强调,一个协作性的多专业框架对于理解和满足视力受损儿童及其家庭的复杂需求至关重要,特别是在生命的关键早期阶段。本文介绍了一项针对0至24个月大视力受损儿童的为期六周的评估计划,该计划在意大利罗伯特·霍尔曼基金会过去十五年中实施。该计划整合了来自各个领域的专业人员,包括小儿眼科、神经学、心理治疗和康复治疗,以全面评估儿童的视力和发育功能。这种方法的核心是照顾者的积极参与,他们了解、参与并能根据孩子的需求采取行动。报告认为,跨学科和以家庭为中心的评估框架对于提供量身定制的支持和促进有效的早期干预至关重要,最终改善视力受损儿童的护理结果。

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