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家长对视力障碍儿童早期干预服务中护理质量的满意度:一项回顾性纵向研究。

Parental Satisfaction with the Quality of Care in an Early Intervention Service for Children with Visual Impairment: A Retrospective Longitudinal Study.

作者信息

Battistin Tiziana, Mercuriali Elena, Borghini Carlotta, Reffo Maria Eleonora, Suppiej Agnese

机构信息

Department of Neurosciences and Rehabilitation, University of Ferrara, 44121 Ferrara, Italy.

Robert Hollman Foundation, 35143 Padova, Italy.

出版信息

Children (Basel). 2024 Feb 10;11(2):230. doi: 10.3390/children11020230.

DOI:10.3390/children11020230
PMID:38397342
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10887141/
Abstract

The fundamental role of vision during development and the nurturing role of early intersubjectivity have enabled the Robert Hollman Foundation to develop an early intervention program providing holistic support to visually impaired children and their families, where fostering parent-infant interactions is at the heart of our care. The aim of this study is to understand how parents perceive this approach. It is an eleven-year retrospective study of children following the Robert Hollman Foundation's early intervention program, in which parents' ( = 1086) perceptions of quality of care were measured through the administration of a specifically designed 4-point scale questionnaire. Annual longitudinal trends of parents' perceptions were calculated for every single response. Parents reported a very high satisfaction value in 21/23 questions (Mean > 3.7 out of a maximum score of 4, with the highest scores in human and soft skills of professionals) with a statistically positive trend ( < 0.05), throughout the period considered. Our core approach, based on an , has been appreciated and confirmed by the high satisfaction reported in the questionnaires by parents of children with visual impairment. We therefore hypothesize that parent-infant relationship-based and individualized approaches may help parents achieve better health, well-being, and quality of daily life for their children.

摘要

视觉在发育过程中的基本作用以及早期主体间性的培育作用,促使罗伯特·霍尔曼基金会制定了一项早期干预计划,为视障儿童及其家庭提供全面支持,其中促进亲子互动是我们护理工作的核心。本研究的目的是了解家长如何看待这种方法。这是一项对参与罗伯特·霍尔曼基金会早期干预计划的儿童进行的为期11年的回顾性研究,通过专门设计的4分制问卷来衡量家长( = 1086)对护理质量的看法。对每一个回答都计算了家长看法的年度纵向趋势。在整个研究期间,家长在21/23个问题上报告了非常高的满意度值(平均得分>3.7,满分4分,专业人员的人际和软技能得分最高),且具有统计学上的正向趋势(<0.05)。我们基于[此处英文缺失具体内容]的核心方法,得到了视障儿童家长在问卷中报告的高满意度的认可和证实。因此,我们假设基于亲子关系和个性化的方法可能有助于家长为孩子实现更好的健康、幸福和日常生活质量。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c661/10887141/3a4701470d02/children-11-00230-g001a.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c661/10887141/3a4701470d02/children-11-00230-g001a.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c661/10887141/3a4701470d02/children-11-00230-g001a.jpg

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本文引用的文献

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Front Psychol. 2023 Apr 27;14:1175675. doi: 10.3389/fpsyg.2023.1175675. eCollection 2023.
2
Global, regional, and national years lived with disability due to blindness and vision loss from 1990 to 2019: Findings from the Global Burden of Disease Study 2019.全球、地区和国家因失明和视力丧失导致的残疾年数:2019 年全球疾病负担研究结果。
Front Public Health. 2022 Oct 28;10:1033495. doi: 10.3389/fpubh.2022.1033495. eCollection 2022.
3
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MethodsX. 2024 Mar 16;12:102656. doi: 10.1016/j.mex.2024.102656. eCollection 2024 Jun.
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残疾儿童家长对在早期干预中工作的卫生专业人员互动质量的看法:一项定性描述性研究。
J Clin Nurs. 2023 Sep;32(17-18):6519-6532. doi: 10.1111/jocn.16580. Epub 2022 Nov 15.
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Visual intervention in early onset visual impairment: A review.早期发病视力障碍的视觉干预:综述。
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